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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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When my mom received palliative care, the palliative care nurse focused on helping ameliorate the things that were bothering her. For example, Mom often said that she had pain in her legs. To get help with this from her physician, she would have had to go to the physician's office (traveling, even for appointments, was an ordeal), wait for some amount of time, be seen for not very long by the physician, and receive the type of attention that physicians are trained to provide: "If I can diagnose something, I will try to fix it." The palliative care nurse came to Mom's home (while she was still living there) and then to the assisted-living memory care facility about once per month and took the approach that she might be able to help reduce the pain and that the underlying cause didn't need to be diagnosed or fixed. The visits from the palliative care nurse were at least 1 hour long, at Mom's speed, and the nurse made sure that we all felt comfortable with what was being discussed during the visits. The palliative care nurse made the recommendation for transition to hospice care.
Palliative care is wonderful when you can get it and when the gerontologist or your MD are trained in it. I was shocked when in 2020 a huge hospital complex like Desert Regional in Palm Springs had no such thing. One of the Resident MDs told me it was her specialty and she was shocked as well. There is more and more of it now.
I think the wonder of Palliative is that it is the most HONEST care, other than Hospice, rendered today. It allows for what treatment you wish to take, but it recognizes that whatever choices you make are unlikely to substantially prolong your life, or cure anything much at all.
Palliative is my next step with now being 83 and having my second bout with TNBC (Triple Negative Breast Cancer). I have discussed with MDs what treatments I WILL take and what I will decline, circumstances under which I would do hospice and circumstances under which I would do MAid (Medical Assisted death), and have already been through the psychological required visits, and etc. It puts the power and the choices in your hands, or in the hands of the person you assigned to your wishes when you can no longer make them.
Read up. Discuss with Doc. Ask for a referral. The other thing you should know is that palliative care often allows for better and more effective "pain control" given that it is recognized that addiction to a need for medication will not substantially change your life or your life span.
My father received palliative care through Kaiser for about a year. Doctors and PT for Parkinson’s all came to him. He wasn’t in pain, didn’t need a hospital bed and didn’t need bath aides. That all changed the day mom found him crumpled on the upstairs suite and permanently delirious, a predicted outcome of saying no to dialysis. Thats when we switched to hospice, who provided a hospice bed, a tank of oxygen, antibiotics in case of uti, unlimited diapers and hygiene supplies. The comfort meds took the edge off the pain and agitation that accompanies the dying process.
One major drawback of home hospice is that RNs are in charge of performing medical procedures that would typically only be done by an NP/PA. My sisters witnessed the hapless hospice RN fiddle with my dad’s penis trying to seat a foley until my obgyn surgeon sis took over. At least we had a doctor in the family.
I was using palliative care when I was diagnosed with stage 4 cancer in 2023. They tried to determine if I was suicidal, primarily. Then wrote prescriptions for antidepressants and that was it. In fact, they never bothered to check that the medication they prescribed was not recommended people over the age of 60. I was 66 at the time. The team was composed of a social worker and a doctor. They were patronizing and useless to me, acting as though they'd never dealt with a person going thru cancer before. Extremely tone deaf and not valuable to me in the least. When I needed a refill, the doctor had actually retired w/o letting his patients know!
In 2023 you were fighting the cancer into remission with chemo or immunotherapy. How were you eligible for palliative care, defined as exclusively symptom focused as opposed to life extending?
My dad was stage 4b ckd when admitted to KP palliative care. They continued his kidney meds but quit doing labs as my dad did not want dialysis.
In July of 2018 I had hospice come out and do an assessment for my now late husband who had vascular dementia, and was told at that time that he didn't qualify for their hospice services yet but that he did qualify for their palliative care services which only meant a nurse coming out every 4-6 weeks to check on him and that was about it. I at the time saw no need for that as that wouldn't help me or him at all. But by Dec. of that same year my husband was under full hospice care in our home where he remained until his death in Sept. 2020. There's a HUGE difference between palliative care and hospice care, so make sure you understand exactly what you're signing your loved one up for.
My mother, age 97, has dementia, congestive heart failure, and other aging-related conditions. She lives in an assisted-living memory care facility. She received palliative care for about 1 year; she's now receiving hospice care. We found the palliative care to be very helpful. It was positive and delivered value. I strongly encourage anyone who has access to palliative care for themselves or a loved one to try it.
Hi Rosered- can you please explain a bit about what the palliative care that your mom received consisted of? And whether you arranged that care through the memory care facility or through a hospital?
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I think the wonder of Palliative is that it is the most HONEST care, other than Hospice, rendered today. It allows for what treatment you wish to take, but it recognizes that whatever choices you make are unlikely to substantially prolong your life, or cure anything much at all.
Palliative is my next step with now being 83 and having my second bout with TNBC (Triple Negative Breast Cancer). I have discussed with MDs what treatments I WILL take and what I will decline, circumstances under which I would do hospice and circumstances under which I would do MAid (Medical Assisted death), and have already been through the psychological required visits, and etc. It puts the power and the choices in your hands, or in the hands of the person you assigned to your wishes when you can no longer make them.
Read up. Discuss with Doc. Ask for a referral. The other thing you should know is that palliative care often allows for better and more effective "pain control" given that it is recognized that addiction to a need for medication will not substantially change your life or your life span.
Good luck.
One major drawback of home hospice is that RNs are in charge of performing medical procedures that would typically only be done by an NP/PA. My sisters witnessed the hapless hospice RN fiddle with my dad’s penis trying to seat a foley until my obgyn surgeon sis took over. At least we had a doctor in the family.
My dad was stage 4b ckd when admitted to KP palliative care. They continued his kidney meds but quit doing labs as my dad did not want dialysis.
I at the time saw no need for that as that wouldn't help me or him at all. But by Dec. of that same year my husband was under full hospice care in our home where he remained until his death in Sept. 2020.
There's a HUGE difference between palliative care and hospice care, so make sure you understand exactly what you're signing your loved one up for.
can you please explain a bit about what the palliative care that your mom received consisted of? And whether you arranged that care through the memory care facility or through a hospital?
Thank you, JB