Where does my daughter go if she's not sick enough to be in the hospital but too sick to be at home? - AgingCare.com

Where does my daughter go if she's not sick enough to be in the hospital but too sick to be at home?

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She has a terminal illness. She's receiving hospice care at home but it's me doing the brunt of the work and it's overwhelming. The hospice at home was not what we expected and there were meds and equipment she needed that she didn't get. Now she is back in the hospital. I don't know what will happen next. But if she is to get well enough to be discharged into hospice care, does it have to be at home?

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A good friend of my husband's had late stage Lou Gehrig's Disease and his wife was a hospice volunteer. She had been very pleased with the care the patients at my mthr's memory care unit had and it had private rooms available, It worked perfectly. She and the dog visited every day from 8 am to 5 pm when they went home, and she was able to sleep knowing that he was being cared for. Hospice came there to take care of him, and provided all the needed equipment. He taught an online course until 3 mos before he passed using the memory care's wifi! In our state, this place is officially a personal care home with a memory care focus. Something like that may be what you are looking for.

Also, you can refuse to bring her home and tell the hospital social worker you need help to find a placement for her. If you let them discharge her to home, you lose that resource.
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The hospice service we used has a facility of their own. (We did not need to use it.) Some hospice services use assisted living or nursing home space when the patient cannot be cared for adequately at home. Discuss this with the hospice providers in your area.

I am so sorry for your situation.
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there should be a family conference before the patient is released from hospital . that would be the time to vehemently discuss your concerns . our hospice organization was a freak show . from crackpipe burns on some of their lips to some of them having three eyeballs and triple lens spectacles . theres a good chance their equiptment introduced bed bugs into our home too , then we were treated like criminals for having bed bugs .
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