So, if you all remember, dad was in the hospital and acute rehab for 5 weeks. They said he should go on hospice, but frankly I resisted because I KNEW he had the wrong meds... but then he seemed to decline for a few days, sleeping and couldn't be woken and did make some weird word choices when he did speak (called his walker a "dog"), so I consented to hospice thinking that his temporary improvement the week before was just a fluke. Now he has been in his memory care with the RIGHT medicines (had to really push hospice to put him on them as they weren't familiar with them)... and he is making total sense... He's slow talking and quiet but his sentences are complete and he's using some fairly sophisticated words. He's remembering things that surprise me as well. I guess his hematoma just took longer to heal than the hospital rehab gave him... he is 93 afterall so things should take longer.
Anyway, since the hospital and rehab and inpatient hospice (6 weeks total) barely got him out of bed he's very weak and a fall risk. He's in memory care and trying to exercise in his bed and wheelchair. He asked me to bring in his portable bike so he could pedal. He can't walk far but he really wants to work towards walking.
However, hospice tells me they don't do PT (Medicare says PT can be done to maintain health even in hospice). Hospice provided the hospital bed, oxygen (I returned the one we had at home). wheelchair and comode, and pad and alarm for the bed. I feel like it's going to be a pain to cancel hospice or to find a hospice that will give him some PT.... it's what he wants and for him it's a quality of life thing. Even though I doubt he'll ever really walk reliably, he wants to try to build himself up again...
So if I cancell hospice I have to find a place for all this medical equipment, They provide a nurse 1x a week (maybe every 2 weeks) and a CNA for showers 2x a week. But before, when he wasn't on hospice we got a CNA/Personal Care Assistant from the VA for showers and walking 4 x a week (dad was walking 1/4 mile before his TBI) so actually, I feel like he' is getting less than he did before. Yes,, they pay for diapers but me paying out of pocket for PT is going to cost a bunch more than diapers.
Maybe I can find another hospice with PT? Has anyone accomplished that? I'm not sure the VA will provide the shower help and the PT while he's on hospice (even though he's only on hospice for dementia and not for the TBI or his heart issues). I'm working that angle.
I'm trying to figure out who to appeal to at this hospice next as well. Yes, they provide some medication but so did dad's Medicare part D and the VA... he seldom had to pay much for his meds. So I feel like he got more before... and here Hospice is getting $150/day for his care.
Dad has Medicare, a Medicare supplement plan (not an advantage plan) and it's fairly rich...he's had to pay nothing much.. AND VA health care AND Medicare Part D with Humana. I know that people rave about all the free help and support hospice gives but maybe, for my dad, he has more insurance than the average?
I don't expect this to be curative or even extend his life by much... he has a lot of health issues... but it's something he wants to do. (if it was me, there is no way I would want to work as hard as he does.. I hate exercise!)