Anyone with Kennedy ulcer experience? I need some insights please. Question 1: How quickly did it grow and/or how big did it ultimately become? Question 2: Did the ulcer signal the beginning of transition or did it appear after transition started?
Background: Mom is on hospice and 2 nights ago, as I was getting her ready for bed, I noticed an area just above her rear-end crack that was swollen and had a red, penny-size abrasion on it. I see her rear-end at least once a day and it had not been there prior. This thing popped up very suddenly. I put barrier cream on the spot and she went to bed as normal. When she got up the next morning I checked it again. In less than 12 hours the spot had turned purple/black with angry red around it. It was now about the size of a quarter and shaped like heart maybe. I sent a picture of it in to the hospice nurse and we texted a little about the possibility of it being a Kennedy ulcer. Many characteristics seem consistent but it will be 48 hours from the time I first noticed and it tonight and it hasn’t gotten worse. Not better either, but maybe some of the swelling around it is down. Also, mom is weak, frail but not actively transitioning as far as I can tell. The nurse will be seeing it and talking to me more early next week but I’m hoping to glean some knowledge from you guys beforehand. I’ve searched the Internet but not really found answers to the questions I have. So if you've dealt with a Kennedy ulcer I would appreciate hearing your story. Thanks in advance.
http://kennedyterminalulcer.com/
If in fact it is a Kennedy ulcer(which it sure sounds like it is, because of the location), they are pretty much fatal, and hospice should be treating it accordingly.
Call hospice back and request that someone come out today to look at it, as it is their job to treat any wounds that appear on their patients body.
And make sure that you are leaving nothing left unsaid with your mom. God bless you.
You might call the hospice folks again and ask that she be seen sooner than next week.