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My mother didn’t want me to help her clean up at first, she’s paralyzed on the right side of her body and needed more assistance, the older she got the smell worsened until I told her “You Stink! Her nature is sweet so eventually she gave in, initially I felt it was degrading for someone else to help clean your private parts hence the resistance, and I get it. Now she thanks me for taking care of her. Take it slow, maybe say something like can I wash your hands and give her a nice hand massage. She’s having incontinent problems.
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My mom is far into dementia. She refused showering for months. For the past year we have had hospice come once a week to bathe her. When they evaluated her in the beginning they said she qualified. Now, a year later, since she isn't dying they won't do it anymore. This is posing a huge problem for our family as well. I ,her daughter, am living with her and my dad. My dad is losing his sense of smell. Oh joy! I can't stand to be in the same room. It's so hard to be understanding and nice when they continue to refuse over and over and over again!. I have bathed her in the past . She put up a huge fight before allowing it though. We have a new girl, who does this on her own , and she's supposed to come next week. I know this won't work because even hospice wasn't working well near the end. Honestly I am so tired of the arguing and her being so verbally abusive to me that I just feel like giving up on this issue. I realize she will get a UTI and end up in the hospital. But what is one to do???


By the way.......we have considered greatly her going into a home however she knows us still and my dad feels he can't handle her being so sad without him.
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gdaughter Feb 2021
HEy...now wait a sec...somewhere in this mess is my response and I described my mommy dearest who is 98 with dementia...and she has not bathed or showered or allowed any help for nearly FOUR YEARS. AND NO UTI that we are aware of.

Good luck with the new person and take comfort in knowing you have done and are doing all you can. I too have considered placement, but to what end I say? To tear apart these two bonded souls who have been married 70+ years? The stress of that alone could kill my 103 year old father. OR me considering I am recuperating from a dissected aorta! Just the investigative work, prep work, actual move...so not worth the stress of it all. My concern is if something changes...For instance right now she can dress and handle the toilet and eats on her own if given food...but as I complained elsewhere Dad will not cooperate with a plan to lock her out of the kitchen which is the simplest way to keep her out of the fridge where she is eating food that is not well, it just is not what one should eat in access. Like Jam or bbq sauce. SHe adores her olives and pickles. Usually there are no negative consequences...today there was....poop on the living room carpet....so I can only wonder if there is residue on her. She is impossible to deal with...but life goes on. This only happened one other time and she absolutely refused to get in the shower. I couldn't stand the thought of poor dad having to get in bed with her so I literally got a scissors and cut her damn nightgown off of her throwing a robe over her as I completed it.
And so it goes...And it is a damn shame the turn Hospice has taken. I get they have their rules etc., but out of simple human decency you'd think they'd do what they could to make sure you had other help lined up prior to dumping you.
Just reading your last statement, and can so relate....mom always wants dad in view it seems....Just not worth the grief to upset everyone, unless there is a dire safety or health concern. I'm sure some will see my situation especially as just that if not borderline....but we are still handling it...maybe not well...but what gain is there to someones life to have others force them screaming and upset to take a damn shower? It's just not worth it.

I have posed a similar question myself some time back, as well as brought the subject up at a support group meeting. I am about ready to scream with the clueless people who suggest make it a "spa day" environment. This is a problem so beyond that.
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Lots of good advice here so just adding a couple of quickies. When cleaning the toilet be sure to clean the hinges of the seat. You may have to remove the seat. My son is on the spectrum and this is one area where he cannot seem to quite get it right. It’s a constant battle to find where the “boys public toilet” smell is coming from.
I also wonder if she wouldn’t feel more comfortable in a shower if there was a seat in there and / or grab rails. She might not be washing because she is afraid of falling. Of course she’ll need a hand shower and encourage her to spray her nether regions. And make sure the bathroom is warm enough for her.
Good luck!
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comfort bath wipes. It's a shower in a wipe. Or find another brand. They all leave skin smelling nice and soft.
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1) There is no number of days by which a person needs to shower. She needs to wash where needed when needed.
2) Showers can feel unsafe to the elderly and the use of shower shoes, seats, and grab rails can make it less stressful.
3) Assistance may be needed from yourself or probably an outsider who she doesn't feel embarrassed in front of - perhaps arrange a shower assistant to come in as often as NECESSARY, and sort out cleaning herself as needed for other times.
4) showering can be painful - sounds ridiculous but try after you have been to the dentist and you will soon realise the pressure is plenty to cause pain to an elderly person with thinner skin and less tolerance to things there rest of us take for granted. Perhaps blanket bathing or use of a bath rather than a shower would be an option, or maybe having a tap fixed so you can reduce pressure to the shower or change the type of shower head.

Just some points - try thinking laterally from what you would expect from yourself and talking to her about what she will do unless she wants to have to go into AL.
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1- You just got married in October?
2. Was your mother already living with you? What is your mother’s condition ? What does she say about all this?
3. Is this your home or your husband’s home that everyone has moved into? Are you dependent on your husband for a home and food for you and your mother ( is this a job or a marriage)?
4. Where was MIL living before she moved in with everyone? What condition was her residence in?
( these are questions for you to ask yourself)
5. For most of 2 years I felt like I was living in a nursing home and was the sole employee in that nursing home ( my husband of over 50 years had several strokes and my brother was given up by his physicians as terminal and about to die any minute).
i had to learn to deal with nursing home filth and smells ( something the nursing home had not learned) and not being able to have my grandchildren over because it was so bad.
I was running for 20 hours a day with constant scrubbing and 4 loads of laundry a day, cooking 6 meals a day for diabetics who would NOT eat the same things. ETC.
i cannot imagine marrying in to this nightmare.
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Loss of smell can be a sign of dementia. Strokes can (and usually do) cause dementia. Have a private meeting with your husband. Make a plan to get a physical and functional evaluation for his mother. Based on those results determine if she can be cared for at home, and if there are funds to hire the support she needs. His first priority is to you and his marriage. Mom is important, but she isn't his wife. Mom needs more support than the two of you can give, and he needs to be doing the work also if she continues to live with you.
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I'm not sure what her mental state is at this point, but my mother has mild dementia and started balking at taking showers a few months ago. A friend (also a caregiver) asked me if she had ever had a bad experience while bathing. She had actually fallen into the shower door a few years prior and broken a rib. Apparently, the dementia caused her to associate the fear of falling with the shower.

After installing safety handles and non-slip pads in the shower, she became much more accepting. Not that she still "doesn't want to", but now allows herself to be washed. Also, the suggestion that if she didn't want me to help her, then we would have to hire outside help to come in and bath her. Obviously, she preferred my help to that of a stranger.

If she is suffering from dementia, it's possible she doesn't realize others smell her or how long it has been since she bathed. Immediately after showering, washing and styling her hair, she sits down and asks if she has to shower and wash her hair today! Crazy!
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I'm not sure what her mental state is at this point, but my mother has mild dementia and started balking at taking showers a few months ago. A friend (also a caregiver) asked me if she had ever had a bad experience while bathing. She had actually fallen into the shower door a few years prior and broken a rib. Apparently, the dementia caused her to associate the fear of falling with the shower.

After installing safety handles and non-slip pads in the shower, she became much more accepting. Not that she still "doesn't want to", but now allows herself to be washed. Also, the suggestion that if she didn't want me to help her, then we would have to hire outside help to come in and bath her. Obviously, she preferred my help to that of a stranger.

If she is suffering from dementia, it's possible she doesn't realize others smell her or how long it has been since she bathed. Immediately after showering, washing and styling her hair, my mother sits down and asks if she has to shower and wash her hair today! Crazy!
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