My mother-in-law is 66, in her thirties she was diagnosed with an extremely aggressive arthritis. From the heavy pain meds her kidneys lost all function, and she’s been on dialysis for the past (I forget how many) years. She started with hemo, but for the past two or three years she’s been on PD and does dialysis from home nightly.
For the past year her health has been declining in very strange ways, and nobody can pinpoint why. She fell ill on a day trip, and was put in the ER. She had an infection from an old hemo port and had to have surgery to clear it out. She code blue’d at the hospital during that trip, and it’s been downhill since. Just after that she had a surgery for a revision on a hip replacement - much to my wife’s dismay, her surgeon insisted it was necessary and she wouldn’t have any issues. The bone never healed, but she still had some mobility with a walker.
After that came the seizures, out of the blue. Then came a sharp decline in mobility. She got to a point where she’s unable to walk or move without assistance. She often tries: if you turn around for even a moment, she stands in defiance and often loses balance. During Labor Day weekend she was fighting off a bad UTI, and frequently asked to be helped to the bathroom. Father-in-law took her to the bathroom, and remembered he left some water running, and she he got back she was a few steps out of the bathroom, unconscious, not breathing, no heartbeat, and a really nasty abrasion on her head - nobody still has any idea what happened, and she doesn’t remember.
After being released from the hospital, the symptoms got even more bizarre. Loss of appetite, insomnia, hallucinations (she often holds long, drawn out conversations with deceased relatives), agitation and outright anger (yells at my father-in-law), refusal to cooperate, and panic. The more panicked she gets the more her speech degrades into half-finished thoughts and word salad.
She’s on seizure meds, although her neurologist says she sees no evidence of being epileptic. She’s on thur meds, her doctor says nothing too off to make adjustments. All tests she she’s completely physically healthy (aside from kidneys). Her psychiatrist says he sees no evidence of any issue (no demensia, no delirium). Her nephrologist says she’s their best patient, and is getting great dialysis and isn’t on any dietary restrictions.
So it’s kind of a dead ends all around. Everyone says she’s healthy and nothing wrong... but spending time with her says, “something’s very wrong here!”
Any ideas out there? Anyone experience anything similar?