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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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Is your mom receiving hospice or palliative care? If she is, I suggest you ask the care providers about this symptom. It might be terminal agitation (also called terminal restlessness).
I was not aware of this condition, because I haven't experienced anyone having it, but it sounds like what the OP describes. Another new thing I've learned from this forum, so thank you.
This is in fact quite common in latter stages and as the end of life approaches. I highly recommend considering Hospice care now. Not only will they help with end of life plans, they will also provide you such good information.
Do also look up online such things as "elder picking at bedsheet". You will be amazed that up it will pop. It actually has a NAME: ("Elderly people picking at bed sheets, known as carphologia, often signals confusion, delirium, or end-of-life restlessness (terminal agitation) due to physical discomfort, anxiety, or dementia, where they may be trying to grasp imaginary things or find relief from itching").
So common is it that almost anyone who is actively can be seen picking the bedding with nervous small pecks. And no CERTAIN reason is usually found. This is a manifestation of disturbed brain activity.
Tremors are common as well, and normal to certain end stage dementias involving Parkinson's and Lewy's, though manifesting in others as well.
I hope you will consider Hospice help at this time. I would discuss the option with your doctor.
This is agitation my Mom went through it also your mom’s doctor can prescribe her medication to keep her calm. I put pillows around my mom in bed to keep her from hurting herself she couldn’t control it. Praying for you I understand how hard this is my Mom had long stage Alzheimer’s for 20 years she passed away quietly in my home after I took her out of the nursing home for a year half what nightmare there. Hope this helped
I didn't like this, you feel so helpless! It's agitation,where the mind and body are in conflict with each other. While medication can help, I had some success with keeping her hands busy with a spongy squeeze toy, not one of those exercise balls for arthritis, something soft. There's other things things out there like pop caps but those were too hard to play with. There's blankets and fidget toys for this condition. I got Mom a Hello Kitty and a small yellow chick that was extra soft! Her hands were busy and helped her mind focus. You can't stop it but you can help her relax.
As people with Dementia near the end of their lives, anxiety sets in. My Moms was humming. It started out as just a low hum, everyday it got louder where it was affecting the other residents so she was given an anxiety med. It calmed her to the point though, she just sat and stared. My RN daughter says it then becomes a quality of life thing. Anxiety is not good for them.
I'd like to add, there are many You tuber hospice nurse channels out there, one of the best I've used is Hospice Nurse Julie. Tons of info, examples and suggestions. They have been a huge help with me caring for my wife.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I'msorry you're going through this, both of you. End of life is very difficult. God bless you.
I highly recommend considering Hospice care now. Not only will they help with end of life plans, they will also provide you such good information.
Do also look up online such things as "elder picking at bedsheet". You will be amazed that up it will pop. It actually has a NAME: ("Elderly people picking at bed sheets, known as carphologia, often signals confusion, delirium, or end-of-life restlessness (terminal agitation) due to physical discomfort, anxiety, or dementia, where they may be trying to grasp imaginary things or find relief from itching").
So common is it that almost anyone who is actively can be seen picking the bedding with nervous small pecks. And no CERTAIN reason is usually found.
This is a manifestation of disturbed brain activity.
Tremors are common as well, and normal to certain end stage dementias involving Parkinson's and Lewy's, though manifesting in others as well.
I hope you will consider Hospice help at this time. I would discuss the option with your doctor.