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Mom is very independent and lives alone. Contracted COVID a month ago and was hospitalized for a few days. Over the past few weeks, she has been having difficulty taking her meds. My sisters and I have set up her medications in a pill organizer. She also takes insulin several times a day. The problem is, she cannot remember which little box to take her pills from. She does fine when one of us is there with her (we make her do it)-she reads and follows directions well, but then says she can't do it if one of us isn't there. She knows what day it is, date, cooks, etc. just like normal but, for some reason, cannot figure out the pill thing. Any ideas on what we can do to help her? Some days, she does really well and needs no help or reminding but it's getting worse every.single.day. She will be evaluated by the neurologist in 3 more months as he has a 4 month wait list. Ugh.

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According to your profile, mom suffers from dementia/Alzheimer's which is likely why she's having issues taking meds. That was my mother's first red flag for me....finding pills in coffee cups she'd "take later" or under her recliner that'd fallen w/o her knowledge.

You say you know "she's not ready for long term care" yet it's obvious she does need help and guidance daily, at least with medications. Keep an eye out for more issues which can crop up slowly or quickly, sometimes overnight. Mom was fine until one day she emptied her bladder 100% on the elevator up to her AL apartment. One day she's fully continent, next day THAT. From that day forward, she quit arguing that she didn't need Depends and thus began her 6 year struggle with dementia.

Whether your Mom has covid fog, dementia, or both, she's showing you a need for more help. See if you can hire in home help to assist her w whatever crops up next.

Good luck to you
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I have friends who had Covid fog after even a mild case of Covid. In some cases that’s when dementia came in or was worsened. This is what Covid is doing and it’s why we should all take precautions not to get it. We’re still in a pandemic, and even though we might not have to be hospitalized, it can leave us with ongoing brain, heart and lung damage that never goes away. There’s plenty of credible research about this if one cares to look.

I believe that this mom needs to be in a care facility as some of my friends now are after Covid. Medication management is important, and there’s no point of waiting for brain fog to go away when it may never go away. Plenty of research indicates that Covid accelerates cognitive decline.

Keep that in mind whenever someone tells you the pandemic is over. For the elderly population, it’s creating problems that will affect them and their caregivers for the rest of their lives. And then there’s the CNA in my doctors office. She’s only 30, got Covid that her child brought home from school where precautions are not taken. She was in the hospital for several days and now has a heart irregularity that she may be living with the rest of her life. No one can say if it will get better.
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For good measure, have her checked for a UTI, which can cause such symptoms but can be treated with antibiotics. UTIs are very common in older women. Also, how do you know she's taking her insulin correctly? If you are asking her questions, you need to understand her answers may not be accurate, and she may sincerely believe she's giving you accurate answers. This is what happened with my MIL.

You should also examine her house to see if there are any other subtle signs of cognitive problems: unopened mail, unpaid bills, check register in chaos, etc. My MIL had ordered dozens and dozens of boxes of checks because she kept forgetting she ordered them and where she put them. She also had $930+ in overdraft fees when I checked her unopened monthly bank statement. These are "easy" signs to look for. It will help in getting anwers.

Discount all other possible medical issues that can cause her current symptoms while waiting to see the neurologist. In particular, make sure she is eating and drinking properly. Don't go by what she says... make sure you see it with your own eyes.
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Missymiss Apr 2023
Yes on checking the medications are being taken. Originally my mom was living alone and one state away, but I was taking her to her medical appointments. She swore she was taking her medications. Her blood work showed otherwise. I set up a visiting nurse to help weekly to set up her meds. She complained she didn't need a pill organizer, that she took them directly out of the bottle daily, and after the first time she stopped answering phone calls from the from the nurse to set her next visit. Next appointment at the doctor, bloodshot shower she still wasn't taking her meds.

Other signs were there that something was wrong (don't assume she is cooking for herself)... don't assume all is well. Use your eyes.
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This might be outside of your moms comfort level initially but do you think she & you all could try to use Alexa to get a “medication reminder” system going?

Really truly folks are doing this.

Google “Can Alexa be used for Reminders?” There will be a bunch of options, just sub out for medications then seniors. Folks are doing this.

And you can do the camera on Alexa too if you want to be watching what’s happening although if she starts touching it, that becomes an issue. I would NOT do anything iwatch, it’s way way tooooooo small. It gets touted to be used for health stuff, imho, no way it’s feasible.

fwiw when I started looking at facilities (IL to AL to NH ages ago), I’d see ladies who seemed to me perfectly fine but in the NH…. like appropriately dressed, hair done, wearing jewelry, seemingly social, milling around the nurses station or the activity center…. they didn’t look like they needed to be in a NH. I asked why they were in a NH as I was kinda expecting more elderly “infirm” at the NH. They were there as they needed “medication management” and the RXs they were on were such that they needed oversight. Your mom being on insulin would be this. Medication management is a very real care category and qualifier for a bed in a skilled nursing care facility. Keep that in mind as it may come in handy should you need to place mom into a facility.
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Your mother should be placed into a facility for RX management. Since she required diabetes medication, if not properly managed or not taken at all may cause serious health complications or death.

Speaking of Covid. I'm sorry, but with my research, it may never go away. Variant and sub-variant virus strains continues to spike, with the latest type in India and Nepal. I've been told to not worry, yet several of my friends and some family got breakthrough infections after getting updated booster shots! We are in a new normal. Once long Covid happens, I doubt that it goes away. It is an ugly life sentence.
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If it was just pills being the issue I would suggest a different pill organizer with the day of the week spelled out. This seemed to help my mom for a short while. We had to hire caregivers and they were present when it was pill time.

Amazon has automatic pill dispensers with alarms you can evaluate for her. My mom refused it because of the alarm.

The insulin is a much more serious issue along with checking her glucose everyday.

Most likely the Covid fogged her brain and who knows if she will recover from that.
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LiveFine 28-Day Automatic Pill Dispenser with Upgraded LCD Display, Key Lock, Sound & Light for Prescriptions, Medication, Vitamins, Supplements & More https://a.co/d/2dwA5P0
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SueZ1250 Apr 2023
It’s on Amazon! It’s amazing!!
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My mother with MCI and recent memory problems, benefited from a printed list of daily activites where she could "check off" the boxes; made one in Word and gave her a fresh list everyday posted near the door of her room. My SIL with diabetes went into an AL after covid and an unattended fall for medication management; perhaps your mother needs this care/oversight too (or may need it soon).
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Google PharmAdva Medacube. I use this to manage my husband's medications. It is expensive, but so worth it if you can afford it. I understand many may not. You load the meds in, set up the doses and schedule and then it all happens automatically. I can record a message for each scheduled time for meds, eg good morning love, time to take your morning meds. You have 6 total to take, 1 large white, 2 medium pink pills, 1 square yellow pill and 2 small white ones. Love you!
If he doesn't take right away he'll get reminders every 5 minutes, a phone call at 15 minutes and I'll get a phone call also. There's robust reporting also. And I get emails daily when a med has less than a 30 day supply. You can set the days for that, eg less than 10 days. I can't speak highly enough about this. It gives him a sense of control and me the comfort of knowing he gets his meds at the same time everyday in the right doses.
I do still need to check that he hadn't unknowingly dropped any one they've been dispensed but that occurrence reduced significantly since I updated the recorded messages to describe to him the pills he's taking at that specific time.
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"My sisters and I have set up her medications in a pill organizer."

Did you do this before or after she started having trouble?
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