He has had repeated falls recently. He uses a walker most of the time. Doctor is recommending home hospice. I am not sure he's at the end yet but doc says he's on decline. He says he will forget the walker & fall. Concerned that he will be on path to repeated falls, hospitalization and rehab. If I do hospice, I give up primary care doc and any chance of rehab for falls. I am torn about what to do.

This question has been closed for answers. Ask a New Question.
My Mom was on hospice for the last year of her life. She was in decline after a broken hip and had Alzheimer’s. The care from the nurses, social worker, music therapy etc. was excellent. They also provided a lot of counseling for the family. I thought initially “hospice” meant imminent death. She qualified because she met the criteria- as she was in a slow decline. It’s so hard to make these decisions. Hugs 🤗 to you.
Helpful Answer (13)

Perhaps the biggest obstacle to getting the most out of hospice care is that many people wait until the last minute. If hospice determines that he is not yet ready, you can call them again later.

I felt bad about giving up my husband's outstanding doctors. But they were outstanding because they worked diligently on fixes for whatever came up. Once you decide you are not going for "fixes" anymore, then their role disappears and a doctor with a different focus is appropriate.
Helpful Answer (11)

Talk to a couple of hospice providers about your concerns. Ask the hospice if they provide therapy for comfort.
Ask how to go off hospice if you wanted to change your mind and send husband to the hospital should he fall. Posters can tell you of their experiences with hospice but you need to know what the hospice you would actually work with has to say.
Come back and let us know what you learn.
Helpful Answer (10)

It’s time to consider his overall quality of life. Maybe getting to the point where the cures and fixes don’t make sense.

Also, Hospice will provide another layer of care. Many times patients improve and “Graduate “ from Hospice. This is tough territory. Good luck to you.
Helpful Answer (9)

You can elect to go off Hospice if there is a fall and you want surgical intervention then rehab.
The concern is depending on how severe the dementia is at that time is:
1. Will he tolerate surgery including anesthesia well.
2.Will he tolerate a hospital stay and then re-hab facility stay well?
3. Will he be able to participate in the re-hab? How well will he follow directions?
4. How well will you be able to handle a spouse that will have more limitations once he is back home?
Once back home he can go back on Hospice.

A friend of mine had a similar experience. Her husband was on Hospice, he fell out of bed at the Memory Care facility he was living in and broke a hip. Off Hospice for surgery. Back on Hospice once he returned to the facility. He was not able to participate in re-hab so he was pretty much chair bound at that point, he had been prior to the fall and surgery as well so this was not new.
The main reason for going off Hospice is that the Hospital will bill Medicare for services as would Hospice there can be only one payee for services at a time.

Call Hospice and have a good "interview" with them and find out all that you can about what can and can not be done, what they will and will not do.  Keep in mind there is not just 1 Hospice just like any business there are several in most areas.  There are "For Profit" and "Non Profit" Hospice Organizations.  (personal note..the Hospice that cared for my Husband was a Non Profit and I could not have been more pleased with the care he got, the care I got. the dedication that everyone has is amazing from the CNA, the Nurse, Social Worker to the Chaplain, all were outstanding. I/we got supplies, medications and equipment all within a day sometimes within hours of it being ordered!)
Helpful Answer (7)

My husband was diagnosed a little over 2 yrs. ago with IPF. He quickly lost the ability to do much of anything. I quickly became overwhelmed with the responsibility of being a caregiver to him, taking care of house, farm and animals. At our last visit to the Pulmonologist I asked if we might be eligible for Home Health. He looked rather oddly at me and said, "I think Hospice would be better".

Why had he not mentioned this before? Surely he could see Mike was in terrible shape and I was exhausted. Taking him 60 mi. for an appointment that day, getting his very heavy wheelchair out of my car and him in it was excruciating. I called a friend with Hospice experience and got a referral as soon as we got home. They arrived within a few hours. We had nurses, Chaplin, social worker, folks delivering equipment, etc. I have never been so relieved in my life and Mike felt much more secure. It was like hosting angels for the 3 days before Mike died. Even after he died they checked on me periodically for weeks/months.

I wish the doctor had mentioned it much sooner. I would have been in much better shape to handle everything I had to handle that followed.
Helpful Answer (7)

How old is he? If his dementia is mild and manageable, for example if he can under stand and follow instructions, then he will be fine at home. It is your judgement. You still need caregivers .
Helpful Answer (6)

Here, you can leave Hospice when needing obvious care for a non-fatal problem, and return to it when the extra medical problem is taken care of (or no longer treatable).
Helpful Answer (4)

Hi, I work for a Hospice company and I believe we add life to each day as Hospice is truly about living fully now. The previous post is correct, most people wait too long to receive the additional care hospice offers. Therefore not getting the most out of the excellent benefits hospice provides. You want to ease in to it as you do not want a revolving door of new people in your home and caring for your husband at the last days.
Hospice benefits are at no cost to you and will provide whatever equipment and supplies your husband may need. Whether it is a wheelchair, hospital bed, potable oxygen, Rx delivered to your door etc. They also provide music therapy, pet therapy, social worker, support services for you and your family not just your husband.
You can also keep your primary care physician if you prefer and switch if/when you feel comfortable. Your pcp can refer you to several and you choose the hospice company you feel is the best fit. I hope this has helped a little in answering your questions. Please remember to take time for you and to take care of yourself as well. Blessings to you.
Helpful Answer (4)

I think Grandma1954 gave you super answers, most of which I agree with....My husband is in a Memory Care Unit and although he is receiving good care, I thought he could get better...In talking with them, it was suggested we go with Hospice..At the time, I didn't know, Hospice would take care of dementia patients and/or come to the Memory Care Home...After talking with them and them explaining everything, we agreed and it has been wonderful...They have supplied all of his needs, visit him at least 3 times a week and I have seen the biggest difference, not only in his appearance..My hubby had always been on the go, never a sitter and now, being in a wheel chair has been tough....He constantly is trying to get up, has tried to walk and has had many falls, some ending in a trip to the ER...If he had broken anything or needed surgery, I was told, Hospice would sign off and then pick up again when he returned to the Home...If when the time comes and I want to bring him home, they will be right there with me...Along with all the care they are giving my husband, they still have time to call and ask how I'm doing...These people have been wonderful, real angels of mercy......
But, in answering your question, I think it would be best to sit down and talk with Hospice......
Helpful Answer (4)

See All Answers
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter