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Thanks  for your suggestion to inquire about care for bed bound.  The doctor ordered an evaluation by Hospice and the Hospice RN made an appointment and came out the next day to discuss the program and make an evaluation.  That visit was very helpful and relieving to me.  My husband is now signed up for 3 months on Hospice.  Then there will be another evaluation by the medical director in the home; if he continues a downward progression, Hospice can be extended.Thanks to the person who said not to wait until the last 2 weeks to get on Hospice.  The provide approved RX, medical equipment, Bathing assist, catheter assist, etc.  I was assured I did the right thing by inquiring about Hospice now.  I have a deposit down on a recommended memory care facility but just am not ready to place him.  Of course the expense is horrific but if I can keep him at home that is preferable to us.  This forum is so informative and insightful.  I am glad I found it.
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Reply to Jacques
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I see what you mean about his condition progressing. I hope that Hospice is able to help you. My LO is on Hospice and they have been so very helpful in all matters. They help her and the social worker has been a tremendous help to me. As the sole caregiver, it's sometimes tough, but, she has given me so much support, kindness and information. It's so good that you are reaching out on this site. There are a lot of people who can chime in with info and it has helped me a lot. Please post with an update, if you get the time.
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Reply to Sunnygirl1
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Thank you for your response.  He has progressed so he does not walk, talk or feed himself. Up until today I could usually get him up by 11 or 12 noon to have something to eat and his RX.  He is on meds which I give him twice a day crushed in food.  He does not wander, is not angry, sleeps throughout the night, is kind and gentle as is his personality. I had to cancel the annual check up with his MD due to the terrible MT winter but do plan to call him tomorrow to discuss, possibly hospice.  He has a catheter as of Dec and a home Health RN comes in monthly to change it - due 3/15.  Guess I just felt I had to reach out today.  Thanks again.
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Reply to Jacques
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I'm sorry to hear of your husband's condition. Have you discussed his condition with his doctor? People who have dementia are often depressed. Sometimes, medication can help with their mood and they are able to feel better and be more involved. I might explore medication and see what might be available. But, it's also possible that his inability to get out of bed is due to the progression of his Alzheimers disease. Eventually, they will lose the ability to do many things, like walk, talk, feed self, etc. I'd likely explore what types of help you can get to aid in his care. If he's in the bed all the time, I would seek out instruction on how to care for a bed bound person and if you aren't able to care for him in the home, with help, I'd explore long term care facilities.
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