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My father, 86, has stage 5 PD, is on hospice care, and adamantly wants to see a urologist for what he describes as "pee in his legs". He also has some dementia but it seems to be pretty well controlled with morning and evening seroquel. Has anyone's LO described this symptom before? If pressed he will say that it is extreme pressure that starts low in his legs then eventually travels up to his belly and finally chest until he can relieve it by urinating, which is difficult for him to do. The hospice physician has no explanation since there is no detectable swelling involved in his legs or anywhere else. He wants to try and work out a better routine for constipation in the hopes that will help. My Dad keeps asking what I'm going to do about his legs. I'm at my wits end with this issue. Do I need to take him to see a urologist? Any advice?

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He is on Hospice, would taking to a urologist be allowed? Will he be able to go thru any of the procedures that maybe needed. Or do any of the prep needed?
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Reply to JoAnn29
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I think I'd ask a neurologist. Would it be possible for you to consult one just over the phone to start with? Maybe the one who led his Parkinson's care would be ideal and would know him as a patient.

Apart from urinating, does anything else relieve the sensation he's experiencing? Better or worse on moving, changing posture, anything?
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Reply to Countrymouse
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Strange question, I’ve never heard that problem before. Either it’s a delusion or it’s something very unusual. I’d say that either you treat it as a delusion and string him along (Yes, I’ve made an appointment but the specialist has a long waiting list etc etc), or else you do take him to a urologist if it’s affordable. Or perhaps ask the Hospice physician to work up a story about how his treatment will solve the ‘pee in the legs’. Good luck!

PS I just googled it, and came up with several comments that might possibly help, mostly about peeing..
No fluids to drink after 6pm, particularly tea, coffee or alcohol.
Elevate the legs while sitting or lying down.
Check for diabetes.
Check for prostate problems.
A UTI, even though it’s less common in men because of their plumbing.
"With aging comes a natural loss of antidiuretic hormone," says Tobias Köhler, MD, chair of urology at Illinois's Memorial Hospital. This hormone helps your kidneys control their fluid levels. The less of the hormone you have, the more you pee.
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Reply to MargaretMcKen
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