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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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My dad had hallucinations in the last weeks of his life. He had lung cancer that had spread to his spine; apparently that can affect the brain in the final stages.
It may be possible that other conditions can also cause hallucinations towards the end of life, but this could also be a UTI or dehydration. The doctors would be best placed to advise you.
I just want to reassure anyone who knows someone going through this that hallucinations can be nice as well as horrible. Towards the very end, my dad was convinced the care home staff were having parties every night and they wanted him to play his guitar. He urged me to go to the pub at the end of the pier when I left him - he said he could hear the live music every evening and he wanted me to enjoy myself. The town is nowhere near the sea! He said we'd go there together when he got well and could leave the care home. That was the night before he died.
My husband decades younger than your Mom but with advanced Parkinson’s no dementia but excruciating pain all the time even with higher doses of morphine now but even before had delirium which continues. Hospitalized six times since December, drs cannot find anything wrong, it is not PD as it tends to progress slowly, this happened quickly. October was one episode and since December so intense he is out of hospital for 3 days and will probably go back in the next few days. Some hallucinations as well. Not drinking enough, no UTI. No infections. Delirium could mimic dementia but they are significant differences. Delirium comes and goes it is intense at times, example which scared me as I came to hospital he was elated and ready to go on the trip, asked for bags, when are we going, (another sign as they say people EOL prepare for trip) Delirium could be end of life symptom as well. Specific hallucinations and delusions such as trips, going home etc.
What HAVE they found. You tell us that Alzheimer's and Dementia is ruled out. Is there a history of mental health issues? Has all physical testing for electrolytes and stroke scans and urinalysis tests done?
What exactly are doctors saying to you. How sudden was the onset of this new behavior? History of seizures?
Look forward to hearing what you are being told, but I doubt this has anything whatsoever to do with end of life. Something is wrong. It is for the medical team to find out what it is and what it is not. I am assuming she remains in hospitalization.
The more information you can supply us the better we may be able to help with suggestions.
What tests have they run on her so far?? It could be lots of things: dehydration; not taking regular medication correctly or in the proper doses; UTI, etc. Some of these things have treatments, others do not. I can't imagine the hospital would 't have tested her for a UTI right away, but I'd make sure they do this first and foremost. How are you so sure she doesn't have dementia? Lewy Body dementia can cause hallucinations. It can happen at any time. It's progressive. Where was she living before going to the hospital? Does she live alone? Who found her and got her to the hospital? Whoever is her PoA needs to go to the hospital and present the paperwork and start actively managing her care and decisions. If she doesn't have a PoA then her spouse or adult children should be able to advocate on her behalf. Does she have a Living Will (Advance Healthcare Directive)? Make sure to bring this as well. Depending on what they eventually find you may want to start hospice care for her, which is covered by Medicare. May you receive peace in your heart on this journey.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
It may be possible that other conditions can also cause hallucinations towards the end of life, but this could also be a UTI or dehydration. The doctors would be best placed to advise you.
I hope your mum is otherwise comfortable.
He said we'd go there together when he got well and could leave the care home. That was the night before he died.
Hospitalized six times since December, drs cannot find anything wrong, it is not PD as it tends to progress slowly, this happened quickly. October was one episode and since December so intense he is out of hospital for 3 days and will probably go back in the next few days.
Some hallucinations as well. Not drinking enough, no UTI. No infections.
Delirium could mimic dementia but they are significant differences.
Delirium comes and goes it is intense at times, example which scared me as I came to hospital he was elated and ready to go on the trip, asked for bags, when are we going, (another sign as they say people EOL prepare for trip)
Delirium could be end of life symptom as well.
Specific hallucinations and delusions such as trips, going home etc.
Is there a history of mental health issues?
Has all physical testing for electrolytes and stroke scans and urinalysis tests done?
What exactly are doctors saying to you.
How sudden was the onset of this new behavior?
History of seizures?
Look forward to hearing what you are being told, but I doubt this has anything whatsoever to do with end of life. Something is wrong. It is for the medical team to find out what it is and what it is not.
I am assuming she remains in hospitalization.
The more information you can supply us the better we may be able to help with suggestions.