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I'm taking Xarelto and still am having mini strokes lasting only a few seconds due to having the genetic blood mutation MTHFR (it's homozygous as it comes from both of my parents). Tests have shown my doctor proof of the TIAs. I'm trying to find a folate level and any other possible preventative. I'm noticing memory problems and want to prevent further damage.

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Xarelto is supposedly better than Coumadin. My dr. (he's both a hematologist and oncologist) put me on it when the condition was found. (Had completed chemo and it looked like "chemo brain" but wasn't.) I'm limited to the HAP network doctors in Oakland County unless there's a specific referral. So far the only support groups I've located are for strokes. Online a site called http://mthfr.net is out of Australia and I'm not able to get good verification of their reliability. It seems a bit suspect to me. That's the closest to a support group or resource organization specifically on this I've been able to find. My dr. says the research is still so new on this genetic mutation.
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The last resort is Coumadin. Ask for it.
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Have you discussed this with your medical team? This really is a question for qualified medical professionals.

I see you're not far geographically from me. Have you tried going to any of the DMC (especially Huron Valley Sinai Hospital) physicians? Some are very, very good, and some are not the typical western medicine doctors who feel that medications are the first line of defense against everything.

Sounds like a hematologist might be helpful.

You might also try to find support groups for others with the MTHFR mutation.

Best of luck in finding some help!
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