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This may be long, please forgive, but this forum is such a help.  Not really a question but venting and sharing in hopes of advise and experiences from others. My mom was just moved out of her home because for so many reasons she needs 24 hour eyes on her and she wasn't willing to pay out of pocket. She has LTC coverage which is a huge help for the cost of this. She is on a skilled nursing home environment under hospice care. It's a beautiful 10 bed facility which currently has 6 or 7 patients. She hates that she left her home, complains about everyone and thinks they are understaffed. I told her social worker today that I don't think my mom really understands (as smart as she is) that she is in a hospice environment so there won't be hustle bustle and many aids/docs/ nurses constantly with her. She started getting very confused in recent weeks at home and it has gotten much worse. For the first time she said she's ready to die. She goes in and out of sleep all the time yet she still has some of her feisty qualities. Just a few weeks ago she lost the control of her legs and is now bed ridden. She has defied all the predictions but I have to imagine at this point it won't be that long. However almost three years ago she was told 9 mos. and had small declines along the way. This last decline was extreme and fast. Tomorrow the social worker will be seeing her again and also a meeting with the hospice team and will call me with an update. It's so hard watching them lose all their independence and dignity. T

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She is in a good place. They will keep her comfortable and pain free. Medicare pays for everything but the cost of the facility. TG she had insurance.
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Sunnygirl1 - her doctors at the time told her that there was basically nothing more that can be done for her and that she had 6-9 mos to live. They gave the referral to have her go on hospice. You have to have a doctor refer you to hospice We are in NY so I don't know if other states are different.
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I don't experience with this, but, it sure sounds like she has a lot of eyes on her and trying to meet her needs. That must take away a lot of worry, but, still, it must be incredibly hard to go through this. I'm going through something similar, but, not with a parent. Your profile says your mom has cancer too. Do you mind sharing how you got the Hospice Evaluation?
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Okay. Thanks for the info. I'm trying to sort through some things now. Waiting to speak with my LO's primary. I've had 2 ER doctors ask me about Hospice, but, her primary hasn't. She doesn't have cancer, that we know, but, late stage dementia and some other issues. I just want to get her as much comfort care as possible.

I think that the Hospice rules apply in most states. Please keep us updated on your mom's condition, if you can. Take care of yourself too.
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