Follow
Share

My Mom is 99 years old. She suffers from mild dementia. She is very aware of her surroundings and is still able to carry on a conversation. When you ask her questions about things, she can usually answer in a clear concise fashion, however, her short term memory is very sketchy. She will often not be able to remember events that she witnessed that day, or earlier that week, but she is still able to remember most everything about her life and her family. Many many years ago, when my Mom was of a sound mind and body, she established a living will which includes clear directions that she is to stay in her home as long as possible, and that it is her wish to die in her home. She has lived in the same home for over sixty years. I was granted power of attorney and guardianship in her living will. My sister did not approve of her living in her home and took the matter to court, attempting to have Mom's guardianship transferred from me to her. The courts chose to grant the power to make decisions for her care to a neutral third party. My mom's living will was honored and she was allowed to stay living in her home. About six months ago, Mom fell and broke her hip. She has been in a nursing home ever since. If my sister and I agree, then she and I can make decisions for Mom, however, if we do not agree, the decision is in the hands of the court appointed third party. My sister wants her to stay there. I want to see Mom at home, as is clearly stated as her wishes in her living will. Mom still has the financial resources to pay for full-time in-home care. I am firmly convinced that she would receive better attention, better care, if she was at home with a one on one care giver, rather than in a community of people who all need a great deal of assistance, far more assistance that what Mom requires. I am exploring what legal options are available. I am fighting to see that my Mom's wishes be honored so that she can live the rest of her days with dignity. She is very unhappy in the nursing home. Every time I visit, she tells me that she wants to go home. The food they feed her is just awful! She tells me she is hungry, but she will eat very little of the mush they serve. She can hold the spoon and feed herself, but will only eat if you spoon the slop they call food into her mouth. The staff does not spoon feed her, so she just sits in front of her meals and eats almost nothing. She is virtually starving to death. She was tiny before she fell and now she is just skin and bones. Before the fall, she was able to walk quite well on her own. Now she is wasting away, left to sit all day long. I have observed that when I tell a nurse that my Mom has expressed a need to use the restroom, it is usually close to ten minutes before anyone is able to help her because the nursing staff is always busy caring for the other patients in her wing that need far more care than she does. Please, do you have any advice for me about how to handle this situation? With the help of my attorney, I am preparing a petition to the third party demanding that the wishes my Mom stated in her living will be honored. I know that caring for her in her home is a daunting task, and it will be very expensive. The care she receives now is costing over $100,000 a year and the money is coming straight out of her trust account. Her health coverage only paid for the first few weeks after the fall. If she did not have the means to pay for the home, she would be out on the street. For the kind of money she is paying out now, she could surely get better care at home. If we do not help her get home, she will die of starvation in that home and the doctors will just call it "natural causes." She deserves so much better than this. She deserves to have her wishes honored. Many thanks!!

This question has been closed for answers. Ask a New Question.
What is the reason she's on pureed meals?

Has she been assessed for her ability to swallow unpureed foods?

Nursing home care is costing my mother 12k per month from her funds. However, if she had full time aides in the home, it would be costing her approximately 18k per month. Which does not include home maintenance, increased insurance costs, food, etc. It would also mean that someone ( in your mom's case, your sister?) Would have to get her to the doctor, the hair salon, the podiatrist, the audiologist and the dentist. The would care doctor. The speech therapist to assess her swallowing. And on and on.

Find out about the food and the swallowing stuff. It might make a big difference.
Helpful Answer (5)
Report

VenGetty19, you need an attorney to overturn that disgraceful court decision. If you can't afford to pay an attorney, contact your local law school and see if a freshly qualified lawyer will work for you pro bono. Also get in touch with age-discrimination activists. My uncle died in an assisted living facility aka nursing home. He was perfectly sane and healthy, and had just fallen once at home, and was tricked into moving into the nursing home after a spell in hospital to recover from his fall. Once he was in the nursing home, his physical and mental health declined because he was surrounded by people who were dribbling, shrieking and sexually harassing him. The staff were very patronising to him (eyeballing him and speaking very slowly and loudly). He asked me to put him in touch with a home-care agency and it was all going to be arranged, but various things happened, including his next-of-kin banning me from seeing him, and he died before I could rescue him. Do all you can to help your mother. She relies on you. Her condition will deteriorate even further. You are right to be concerned.
Helpful Answer (5)
Report

VenGetty19, when my Dad had 3 shifts of skilled caregivers at his home each day, the cost for him was around $20,000 per month, or $240,000 per year, costs vary from city to city. My Dad [95] decided his house was becoming too much of a burden for him so he moved to senior living, thus the cost was cut more than half per month.

My Dad was so happy to be away from the house, which he sold, and used the equity to pay for senior living. And the best part, he found people from his own generation, thus he made new friends :)

I am curious why your Mom has problems feeding herself. And as Barb had asked, why is the food pureed? That is usually done if someone has issues with food and water going into the lungs instead of into the stomach. Is that happening? Usually one doesn't eat much because they aren't moving about and getting exercise.

Oh, when your Mom is saying she "wants to go home", chances are she wants to go back to the house where she grew up, to be around her parents, and siblings [if she had any].
Helpful Answer (4)
Report

She wanted to stay at home "as long as possible".  Staying at her residence is no longer a safe choice, and your sister understands that. 

Broken hips and dementia are game changers. She needs to be in a facility with round the clock professional medical supervision.
Helpful Answer (4)
Report

Find out if a swallow test was done, hence puree. If your mom can afford to be at home with 24/7 care, there is no reason why she shouldn't be. It won't likely be for a great number of years. Sister seems more worried about what money will be left to inherit? Good for you for honoring mom's wishes, and good luck!
Helpful Answer (4)
Report

I don't think there is much more that you can do, but it's okay.

You have a good case. You have had the good sense to recruit the assistance of an attorney in presenting it for consideration. If your argument is rejected it can only be for good reasons, in your mother's best interest, that we haven't thought of. Think positive and hope for the best.
Helpful Answer (3)
Report

You did not reference your distance from your mother or sister? Does your sister live closer to her? How often were either of you able to visit your mother at home? Who was taking your mother to her appointments? It doesn't sound like you have had any conversations with her doctors. The "mild" dementia you mention sounds like your denial of your mother's condition. My mother is 92 and would fall into your description of "mild" dementia.However, that "mild" dementia forgets to take meds or forgot they took them and would take them again. That "mild" dementia couldn't repeat a conversation or instructions that were just given two minutes ago. You need to further research your mother's condition thru conversations with her doctor and reading for you to fully understand what her condition is.
Helpful Answer (3)
Report

If Ven's mother didn't have the resources I'm afraid it would be a non-starter, however unfair that sounds from a societal perspective.

Or, again, if the sister was living in her mother's home and handling front-line care, then I'd agree, but I think it doesn't sound like it - he just says his sister "didn't approve."

But this lady is paying eye-watering sums for care in a setting that can't do anything for her that she couldn't pay to have done for her at home. I too hope he'll come back, even if the decision goes against him, because it will be interesting and instructive to hear the guardian's rationale.
Helpful Answer (3)
Report

Sorry to hear about your situation. My mother lives with me and I am her full time caregiver. She has dementia - is 'pleasantly demented' as in has a good attitude, can't speak well because of strokes, confined to a wheelchair. Can still feed herself but starting to have some problems with using the wrong end of the utensil. It has NOT so far (knock on wood) been that much of an expense. She has medicare supplement insurance, BUT we pay out of pocket for a Concierge Doctor who makes house calls, draws blood, performs other tests when necessary, etc. AND is available 24/7 by phone, IM, etc. He even drops off prescriptions at the pharmacy. It's been a God send. We pay him for 12 months up front $1500. She has medicare supplement insurance which pays for the tests, her meds., etc. I have an aid come in 2x week to shower her and change her bed, etc., (again, out of pocket and it comes to about $320/mo), sometimes I have the aid food shop when I'm too exhausted. A young, local hairdresser comes here IN HOME to do her nails, and cut hair and we pay her like $25. a visit (plus tip). I found a Podiatrist who makes house calls/accepts medicare who cares for her bunions and trims her tow nails. If/When she becomes more disabled, we will up any services needed. My point is there are in home services that are WAY LESS costly than nursing homes, etc., if you don't need 24/round the clock nursing in home care. Check around. Good luck!!
Helpful Answer (3)
Report

I almost forgot....once she became impacted and instead of a trip to the hospital I called this place called that is a mobile urgent care unit and they came and de-impacter her. Their emphasis was on accessibility and their charge (I forget exactly) was under $100 - I forget whether insurance picked it up or not (MY mind is mush at this point!). Also, one time I needed a nurse to check something on mom (this was before we got the Concierge doc) so I called the agency that supplies our aides and they sent this really great RN over to check her (here again I forget exactly but it was between $75-100 for that house call). There are services available, if you hunt for them. Oh yeah, and when mom has a s**t-splosion, I call the agency and THEY'LL send an aid over to clean her up (I have trouble getting her in to the tub) (although I DO clean up the bedding, floor, bedside table....) Again, good luck!
Helpful Answer (2)
Report

See All Answers
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter