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She does not sleep much during the day, is not able to walk without assistance.
Sometimes she remembers faces and names, sometimes not. She is always hearing babies cry and seeing persons who aren't there, mostly little children and will talk to them in conversations which make perfect sense. THIS GOES ON FOR HOURS. I need help with suggestions. She has been checked out at the hospital several times and all tests come out fine, no strokes, lack of oxygen, no UTI's. They all say she is in good health except for the dementia.
She takes no medications, but I do give her a .25mg of Xanax occasionally when I can't take it any longer. When I explained this to her Neuologist he said " She needs to be in a Nursing Home". When I said if I did she's be dead in a couple weeks because no one could watch her and keep her from trying to stand up 24 hours a day like I do and she probably would fall, he said "SO".
I realize because of her age she cannot take medications like younger dementia patients can, but there must be something that could help.

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Everyone is different, but Cymbalta was a miracle for my cousin. She stopped having hallucinations, stopped crying, and actually became content. It also works on body pain and that is also great. I would definitely check into it.
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I totally understand how you feel, my mother is 97 and most of her problem in chronic pain from arthritis and decreased mobility. She has some sort term memory loss but really not bad for 97. She has fallen several time since age 94 no bones broken or fractures. You can turn around for a second and boom on the floor. Every fall will take its toll at that age. Since your Mother is 99 with advanced dementia she may be entitled to hospice care in the home that medicare pays for. You may want to ask her doctor or call a hospice near you. Dementia is difficult to deal with alone.
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^^ meant to type "168 hours per week".
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From what I have read on the forums here, there isn't anything that one can do to stop certain traits related to dementia.

Is there any way you could sleep in another room, thus not be interrupted with your Mom's talking to unseen persons? Without getting a good night sleep it will burn you out quickly and create other medical issues for you. Any possibility of hiring a night time Caregiver to oversee your Mom?

As for falling, we all will take tumble as we age, I did last month and broke a bone. Your Mom can easily fall at home faster than you can blink, as it would be impossible to be by her side 168 per week.
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