Up until the pelvic fractures I have been taking my mum for blood transfusions every two weeks due to the myelodysplasia (MDS) because even though she has late stage Alzheimer’s she still seemed to be enjoying life (for the most part). Now that she has fallen it seems like everything is falling apart. She is in excruciating pain so they have her on dilaudid in the nursing home. She is starting to develop pressure sores and now she has started pocketing her food and keeping it in her cheeks. I think I am getting to the point where I feel her quality of life is significantly diminished and I may stop the transfusions but I can’t help feeling like I am signing her death sentence. My mum’s friends and some relatives keep saying she would never want to live this way. I don’t know what to do. We have the palliative care conference tomorrow at the nursing home but they won’t make the decision for me. I keep wondering if maybe I should give more time for the fracture to heal and see if she starts eating better once the pain meds are reduced. I don’t want to stop the transfusions until I’m sure that she won’t return to some quality of life. Nothing prepares you for these life changing decisions.