She's 56, I'm 28 and she started showing signs frontal temporal dementia at 47 and was diagnosed at 52. She's been living with me since three days after I turned 23. She's needed full time care with everything for the last year and half. On the 2nd she broke her arm and didn't react to it at all. Only reason I knew something was wrong was because it swelled up and took her to the ER.
Long story short, I had a breakdown in the ER and I was terrified to touch her again. She's mostly mobile, but likes to get down on the floor and stroke the carpet. I think when I was helping her up to go to the bathroom, that's when the break happened. So, the hospital has been helping me the past week and half getting her into a nursing home, and after the long term Medicaid paper work goes in today, she should be going to the Nursing Home Elms Haven in Colorado.
I know I can't care for her anymore my career has suffered and I'm making way less than I used to. Her disability was paying rent, and I'm currently in the cheapest apt of my area. I'm worried about how I'm going to do it, but I'm more worried about her.
She doesn't seem fazed by anything that is happening, and I'm sure she'll be fine and her typical happy self that she's been at the hospital, but the place she's going to doesn't have good reviews, main problem is being understaffed. She's mostly nonverbal, it honestly depends on the day on how much she does or doesn't talk.
I plan to visit often several times a week at random times and days, but I'm so scared of sending her there. Any advice on how I can make sure she's being taken care of when I can't be there for every day, all the time? It's really hard for me to give over control of her care.