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What should I do besides the obvious change of her sheets etc? Is this simply something one must deal with? My problem, not hers? 90% or more of her time is on her bed, no desire to do anything, I rigged up a watering station for her to turn on and off the water for her rosebushes etc, she doesn't use it. I offer to bring her for a ride to anywhere, she doesn't want it. I ask her what might give her a little motivation or any joy, nothing. So Do I just let her lie in her bedroom, safe and sound, or do I do something more to try and help?
OK just at a crossroads...

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so it is just a shame to see her go on like this, I have plenty to stay busy with so sometimes several months w/o me hanging around pass and she gets right back to where she is 100% isolated, alienating family and neighbors alike, being exactly how she's been her whole life, distant and controlling, yet unable to satisfy her own best interest. It is only her very sharp mind that keeps her going
poor mom just wants to slide down that slope into her own casket, I'm not being melodramatic, she is choosing bed and misery. We're going to the Dr. next week so there will be some hard conversations soon enough
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Is this something that has increased lately?
Have you talk to her doctor about a review of medications? You mention Depression..is she on medication? If not maybe it is worth a try. If she is maybe time for an adjustment.
If everything checks out and she does not need physical therapy for any reason then rather than "offer" to take her for a ride...get her out. Tell her she is going for a ride, tell her she is going for a walk.
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trials Aug 2020
ok I'll try and see if I cannot get her to just c'mon and go with me, I have my doubts but it's worth a try, she is autonomous in the extreme, so just telling her what we'll do is likely to fail, I have been finding ways to engage her positively though, and that is a major breakthrough
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Dear "trials,"

I am experiencing the same thing with my mom. You didn't mention how old your mom is. Mine is 95 with Alzheimer's. She used to live in an ALF until she nearly died of severe dehydration and COVID. Prior to that she was completely mobile and able to dress herself. After she was released from the hospital and rehab center, my husband and I moved her to a new facility in their memory care unit. She is no longer able to walk or dress herself and has lost almost 30 pounds since the beginning of April.

She has been under hospice care since moving in and I just changed the hospice company this past week. The facility is always encouraging her to go to the dining room. I always encourage her too when I talk to her on the phone or do my "window visits" three days a week. They even had an almost brand new recliner chair which they offered me to put in her room. She won't sit in it for long and then wants to get back in her bed. I can't figure out the reason why. This facility has BINGO every single day which is something she used to participate in at her previous facility but, she won't do that either.

Has your mom developed any bedsores? My mom is for the first time starting to develop some bed sores. So the new hospice company has provided a low air loss mattress for the hospital bed along with a barrier cream.

Do you think your mom is depressed? Hospice has just started putting my mom on a low dose antidepressant which takes about a month to start working. So I ended up telling her new hospice nurse the problem with her not wanting to get out of bed. Her answer was sometimes at this stage of their life, they are simply just tired and worn out. That's why I asked how old your mom is. I've come to accept it for the most part although yesterday her new hospice doctor asked me how I felt about my mom getting physical therapy again (it failed after she left the hospital to go to rehab) and I said "yes, let's give it a go." I told the doctor my mom likes her new place and she's in a better place mentally so maybe she will be willing to cooperate this time. If she doesn't participate, I'll have to just let them discontinue the therapy.

Lastly, I know you are offering her things to do and asked her what would give her some motivation but, have you just asked her why she doesn't want to do anything or go anywhere? Just a thought - I hope you find some sort of answer!
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trials Aug 2020
she's 79 and almost bedridden, she has decided on the course, she took to her bed for a variety of reasons both physical and mental. It is sad to watch
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Ask her doctor to send in physical therapy. Phone appointments?
Take her out in the sunshine in a wheelchair.
Make sure she has Vitamin D, and magnesium.

Of course it is a problem for her, body deteriorating losing function, and the possibility of blood clots.

Don't just let it go, you were right to ask this question. Don't berate her, keep trying to help her.

Does she shower, attend to her own hygiene?
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trials Aug 2020
se discontinued all in home visits from the PT to the HHN to the 3 regularly engaged home helpers (think laundry, shopping, etc)
so we went from 2 nurses, 1 social worker, and 3 in home helpers in april when I last spent significant time here, to 0 anybodies except for me when I came back in July
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