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My mother’s husband of 20 years passed today. He was suffering from Lewy Body Dementia for years and that combined with kidney failure eventually led to his death. While not unexpected (he had been in palliative care with hospice at their home), my mom is understandably devastated.


Though he had been diagnosed years ago and mom had many health problems of her own over the past two years, any discussion with her about her future went nowhere. I live in another state, my younger brother lives 2 hours away and does not have a car, and my older brother lives 30 minutes from her but refuses to help or even call her. Mom refuses to disclose financial info—just says “I don’t have any money.” Then she defaults to “I will move in with you.”


I know that this is not a good idea. My boundaries are terrible, and I have a small house. In no time she would take over the house and my relationship with my husband and my mom would be destroyed. Hard as it has been, I’ve told her multiple times that this arrangement will not work for us.


I am flying home tomorrow and staying with mom for two weeks to help her sort through things and just be there for her. I am missing a memorial for a good friend who recently died to do this, but she is hysterical and needs me. It is important for me to be there.


I have a great deal of anxiety because I know the boundaries are going to be tested. I know she is going to bring up moving in with me again. She moved my grandmother in with us when I was a teenager and even though it strained every relationship in her life, she still expects me to do the same. I feel a great deal of guilt but I do not want to give up my independence and relationship. I know this will not work for me, and she will become completely dependent on me. I would be the only person she knows should she move here.


Until everything started to go sideways with her health and her husband’s issues, I was a very happy, balanced person. Now I am an anxious wreck. I have been able to help quite a bit from here—setting up home health, coordinating with doctors, keeping the rest of the family informed while she had hospitalization after hospitalization. I paid for caregivers to take care of her husband while she was in the hospital. I have flown up to help as much as I can without jeopardizing my job. I am happy to be able to help but I walk around constantly waiting for the next crisis.


Lately I cannot stop feeling like it is my responsibility to figure out her life. She is only 72, and I see no reason why she can’t have her own independent life. She is very passive, and even though she has been retired for quite some time she hasn’t picked up a hobby or made an effort to be social with anyone other than her next door neighbor. She is understandably scared because although she has gone through three divorces, she has never lived alone. Even though she knew long ago that her husband’s diagnosis was terminal she’s given no thought to her own future, or if she has, she has not shared it with me. When senior living/assisted living is brought up she insists she can’t afford it and dismisses it as an option.


How do I support her without losing my own life in the process? I am here for her, but I feel that she will cling to the idea of moving in with me even harder now. I am considered “the stable one” and have been told by relatives that since a I am the daughter, I have more responsibility than my brothers. I feel like everyone is pushing this problem on me, and they can’t wait to wash their hands of it.

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It is not your responsibility to figure out her life.
It is not your responsibility to entertain her
It is not your responsibility to house her.
You have not even arrived at her house and boundaries are already broken.
You say you are "flying home" no, you are going to HER house, you are already home.
You say you are missing a memorial service for a very good friend. Why? Will a day or two matter? (I know that probably sounds harsh but it may be setting up a pattern where she says "jump" and you jump.) My response would be different if your mom were in the hospital, or somehow unable to care for herself but that does not seem to be the case.
You can explain to mom she has 2 choices. Look for Independent or Assisted Living where she currently lives or she can look near where you live. The one thing she can not do is move in with you.
(If she wants to look near you I suggest that you tour a few places to narrow it down for her.)
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Myownlife Feb 2022
In regard to your answer to "warkap" above: My husband died when I was 44 and he was 49. I was overwhelmed with grief and remarried probably too soon a year later. That was an awful almost 5-yr rollercoaster period in my life, from which I divorced. That was 19 years ago, and I still am totally fine being alone. I would enjoy meeting "someone" someday if it's meant to be, but have made up my mind, I'd rather be happy alone, than go through a bad time again.
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You won't like this, but I think it's a mistake to go to her.

She's hysterical. She is grief-stricken. She needs support. All of those things we accept.

What you don't have to accept is that this situation, which has been coming down the road for a long time, obliges you to sacrifice something which is unique - you will never have a second opportunity to honour your dear friend in that way - and at the same time expose yourself to a sustained, 2-week long assault on your position that mother's moving in with you is a shockingly bad idea.

So: I really don't think you should go. Not until you're able to do so on your own terms. What practical help does your mother need right now?
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To quote "Only in the last few months has my mom started to work with an elder care attorney in Order to get co-guardianship of her husband with his daughter. She has a relationship with a financial planner, but does not want to share the information with any of us.

The two of them have made no plans for their future.

Both felt that should something go wrong, they would just move in with one of the kids up but never had a real discussion with any of us about it.

My mother is a hard no on assisted living as she does not want to live with anyone but one of her kids, and she assures me that she cannot afford it. It may be true. I don’t know for sure because she refuses to let me in on legal or financial info."

She has an attorney, a financial planner and a step-daughter who will presumably plan the funeral with your mother.

She shares no information with you but demands to move in with you.

And you're showing up for 2 weeks?

Why is that?

Don't go.

Relationships are a two way street. Stop behaving like a doormat. Learn the phrase "no, I can't possibly do that".
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When you assume the panic, you assume the responsibility. The more responsibility you take on, the more other family members will gladly let you. Step back from your emotions and take control of this situation. While at your Mom's, insist on getting all her financial information, SS income, Pension Income, Bank Accounts, Ira's, 401k, etc. There may be an insurance policy from her husband, and find out if he had a will. Your Mom is also eligible to apply for his Social Security payment if the amount was more than hers is now. When you take a practical approach and get a clear picture of her finances, you can then find feasible solutions as to what your Mom can really afford. Next, you MUST get durable POA for her. At only 72, there should be a Will in place, and a Health Care Proxy for herself. If she doesn't have these insist you make an appointment in the near future to set this up. You must be LOUD AND CLEAR that you will not help her unless she helps you with these matters.
It sounds overwhelming but really all you're doing is gathering info, deciding what she can afford, and getting a free consultation from a few elder care attorneys. The rest will follow.
Once you have her budget, you can look for apartments nearby you for rent, see a realtor for home owners looking to rent part of their home, or scout out assisted living facilities. Do your research, always being clear that you will help her find a good place to live and that she is going to have a better life. At 72, she truly can have a better life. Stay positive and try to show confidence. You can do this!
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Myownlife Feb 2022
Your answer to OP was wonderful. I love the practical advice.
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Just came by to say I'm sorry for your mother's loss, Treecrout.

You've asked this same question 3x already and I think the 23 responses you got to your last post should be reviewed here:

https://www.agingcare.com/questions/moms-husband-is-terminal-and-they-have-not-planned-for-any-of-it-472309.htm?orderby=recent

They are great comments and should give you lots to think about while you come up with your plan to tell mom that living with you is NOT AN OPTION. Just make up your mind to do it and then DO IT! Or live the rest of your life with regret and sorrow for not sticking to your guns.

Best of luck!
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One out-of-the-box option is to get yourself out of the whole thing for 4 weeks, during which M can’t talk to you and has to work out things for herself. A holiday? An outback trip where you are out of phone contact? A work commitment? A hospital admission? A retreat to get you detoxed? Make up the best story you can think of. Everyone calms down while you are out of it, and brains can kick in to think about options without so much heavy drama.
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Myownlife Feb 2022
Great suggestion!
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Treecrout, once the two weeks are over and you're ready to return home, what will you do if mom is still hysterical and not coping. Will you be able to leave her?

What if she says "I going to have to kill myself if you leave and don't take me with you"?
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Myownlife Feb 2022
Good idea to think this type of situation out in advance and be prepared. And if OP is reading my response, should something like this happen, be prepared to call Adult Protective Services and be firm that you will not be there and if she is a threat to herself, she may need to be Baker Acted ( or whatever it may be called in your state ) and be hospitalized for a set period of time, i.e 72 hours to make some kind of determination, and then get social services involved in having her go to an alternate care of living, i.e. assisted living. But let ALL involved know that you will NOT be there and do NOT assume responsibility for her.
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How does she know she can't afford senior housing? A retirement community near me advertises their cottages and assisted living. I took a tour fifteen years ago hoping my parents would consider it. Very nice community. Since then they've added memory care and nh.

While there fifteen years ago, I asked if the tall building was a nursing home and was informed that it was actually senior housing for folks with low-income that they do not advertise. Boy did my ears perk up at that because that is probably the kind of place I'll need if there is no inheritance from my father (I'm not counting on it, never have). So I asked if I could see a unit.

One of the residents was passing by and heard me and she invited me to come see her unit (they are all the same). It was nicer and bigger than ones I've seen in a chain CCRC (Erikson) that look like a glorified hotel room for $2,000 a month plus $800,000 entrance fee.

For a minimal amount, these are one bedroom apartments with separate living room, kitchen, and dining areas and one bath. And they have access to everything that the folks living in the cottages have. This is something I could afford BUT I would not have known about it had I not asked.

All that to say, do some homework, find out what is out there, probe and asked about low-income senior housing within a retirement community (not state or federal housing). You might find out that you can show mom she can afford to live in a retirement community.
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Maureenbh Feb 2022
Assisted living is much more expensive than senior independent living. I second the suggestion to do research and understand the differences, here needs and the various costs.
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"Lately I cannot stop feeling like it is my responsibility to figure out her life".

This could be where your turmoil is.

You say you need to keep your boundaries, know it will eat your life up to move Mother's in, house her etc & take on all her responsibility and yet.. you feel like you should do this.

You know & listed all the reasons you shouldn't.

Why do you feel you should?

See what comes up to answer that question? Delve into it.

Also ask it a few ways. Why DO you.. (why take on her responsibilities?).. Why do YOU have to be the one (ie not anyone else).. Why you SHOULD (ie should you always obey Mom's wishes?).

Are you actually trying to make Mom happy? If so, will obeying Mom's wishes actually do that? Make her happy?
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Myownlife Feb 2022
Great advice! I agree. I tended to do that my "whole life", "make Mom happy". Some time ago, I realized, underneath, she is not happy and it is not something that I can MAKE happen. Once that realization hit me, I felt a sense of relief. That being said, I still wind up doing that from time to time, and have to stop myself.
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I have to agree with everyone here. Can you do a quick visit for the funeral then come back a month from now for 2 weeks to sort things. You do realize that with her being a mess you will not get one thing sorted while you are there. She needs time to calm down. She needs time to realize that she has to stand on her own two feet.

As far as moving her in...hard no...even for a short time. Can your husband be the bad guy in this for you?

Make a list of things you are willing to help with and those that are deal breakers and stick to it. Your mom is expecting you to come there and take care of her. Is that what you want? Expect another 15 years of putting your life on hold for her. Again is that what you want? You need to put her on track for standing on her own two feet. It sounds like she is used to being taken care of.
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Myownlife Feb 2022
Way more than 15 yrs :)... could easily be 30 years.
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