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They have done CT scans, MRIs and ruled out all physical issues. Then sent her home with no next steps. We have been waiting 10 days for an appointment with a psychologist to diagnose her issues if it is age-related. She is 75, 100 lbs, we can barely get her to eat and walk to the kitchen. She won't get out of bed for anything but the bathroom, she says she is tired and doesn't 'feel well". She is sometimes mentally confused but not always. She is on 13 medications !!! I realize we need a diagnosis but until then how can we get her moving or do we wait for the 'experts'?

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I'm so happy for you that you're getting some good answers based on science. And your mom is so lucky to have you and your persistence!! Keep us posted!
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Hi all, well today's appt was good. The doctor isn't diagnosing yet, she needs a PET test but he read her MRI and found several small strokes and brain shrinkage among other things. So it isn't anxiety or depression, it is organic. I am furious that the 4 previous neurologists missed the signs on her MRI s. but now we have clear next steps. This is so hard. To all of you do not give up looking for answers, the right doctors ARE out there somewhere. Thank you for your support and thank you for this forum. We are not done conversing.
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She may be in a deep depression and just not feel like functioning, maybe she feels like life is over for her with nothing to look forward to, so she desires to die or perhaps it is a combination of all those medications.

I understand why you feel so helpless and it is so frustrating to try and make an appointment and they put you off for weeks when you need someone YESTERDAY. If it is nothing physical then a psychiatrist may be able to help but you need to see if there is a way to reduce all those medications. There is a liquid called Megace (a prescription) that you can have her drink to increase her hunger.

God Bless You and Your Mom!
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Great news. You and your mom are in my prayers.
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YAAAAAY Karen! I'm excited for you and your mom too. Please let us know how she does!! We're all rooting for you and your mom.
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Yay!! Good job, Karen! Hope little Mom is feeling better very soon.
This makes me so happy, I am tearful:) first intuition was the meds.
Keep us posted on her condition:) xo
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Thank you all. Just returned from visit with primary and have permission to stop all meds but 1. Victory! You have to ask or they don't make the changes I guess. Tomorrow another visit with geriatric specialist. Feeling hopeful.
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It can take as little as two weeks in bed to lose the ability to walk at all. This happened to my bf's grandpa after he broke his hip. He got mad about having to exercise and stated he wasn't going to get out of bed. He never got out of bed again.
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I think it's a combination of 13 meds and depression. The depression can the 3-pronged: medication side-effects are making her feel like s__t, she doesn't feel hungry enough to get up and get a plate, and the sudden realization she's not as sprighty as she used to be.
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How will hospice help? She isn't dying , though she may want too.
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P.S. One other thought - my mom recently had bouts of crying and extreme fatigue. She was hospitalized for 4 hours for her heart, but she wasn't going into atrial fib, which is her main heart issue. When I took her to the doctor the next day, she just happened to look at the lab results from the hospital (where no one had said a word) and said her thyroid had stopped working.

We got her started on thyroid meds and it was like a light switch went back on. She quit the crying and had some energy again. So if your mom hasn't had her thyroid checked, that may be another thing you can consider, after you get her medications checked out.
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Karen, you need to immediately have a pharmacist assess the medications she's on. They could be a LARGE part of her problem. So many times different docs prescribe meds that interact with each other in a negative way and no one is paying attention.

I worked in a pharmacy years ago and the one thing I learned from the pharmacists is that medicines are their specialty - not the specialty of doctors. Doctors DON'T understand how meds work with each other the way pharmacists do.

Go to the website for consulting pharmacists at ascp dot com (I don't think I can put a link in here so I have to spell it out). They have a search area to find a senior care pharmacist in your area. I think you can also do a consult over the phone if there are none near you.

Good luck and please keep us posted!
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Same thing going on with my File but he won't even get up to go to the bathroom. He is going to a specialist tomorrow to see if there is a lack of blood flow or other problem with his legs. He is in physical therapy and rehab has got him to walk about 150 feet. He wants to go home and thinks my husband can come by his house multiple times a day to lift him out of his chair and drag him to the bathroom. He is around 180 pounds and 6 ft. He also thinks all he needs is a hoist in his house and that will solve all problems. He has slight dementia. We have been told that essentially him being defiant and wanting everyone to wait on him has been his downfall. If doctors do not find anything significant tomorrow, he will be spending the rest of his life in a nursing home.
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Karen, you mention her 13 meds. 100 pounds. Poor little thing. I would throw the meds in a bag and go see the Pharmacist. What could they all be for? She needs to be detoxed from all that garbage! I'm not saying none, but I'll bet there are several she absolutely does not need. Bless her heart:) Good luck and let us know.
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I forgot to mention MCT oil or coconut oil produces ketones that help seniors with cognition issued. Keyword search coconut oil and dementia, You tube also has many videos on this. Mom's cognition improved over 80% after I started the supplement. MCT oil is derived from coconuts.
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Hi karenteamb,

My mother's doctor prescribed St. John's Wort. My preference is SamE but I cannot find a liquid version. Mom has been sleeping/napping for two days straight, would not open her eyes and would barely communicate with me. I opened up two St. John's Wort capsules and added it to her liquid supplements.

After a few hours she began to talk to me, wanted to know what her food options were and that her coffee should be hot not cold.

The next step is to get her up but getting her to talk and eat is a major victory.

Mom is only on one med.. Since your mom is on many meds, be sure to check with the doctor to see if St. John's Wort is an option to deal with your mom's depression.

I think that when they sleep, parents are young again and in charge. They open their eyes and feel the creaking of a much older body Given their realities, sleep allows them to escape.

Hope this helps.
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It's understandable that you're angry. I've been there too. The ER sent my mother-in-law home with a broken arm (completely apart) in a sling with pain pills, and said since it didn't break the skin, they will not do anything with it - to make an appointment with an orthopedic doctor. She went a whole week before we could even see the orthopedic doctor, then another week to before surgery! It was broken so bad she had to have a rod put in. So I truly understand your frustration with the system. It's good that you have an appointment with the doctors tomorrow and the next day. I don't know why she is taking 13 different medicines or any other health issues, but if they are still stumped with what to do and do not think she is just depressed or having reactions to her medicines, I would ask the doctors to set up hospice as she may have just given up her will to live. Good luck!!
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Call in hospice
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I called all over the place and couldn't get her an appt any sooner with anyone. They were talking months away even after I explained the situation.
Her regular doctor has admitted he doesn't know what to do and has not helped in any way. She has an appointment with him tomorrow. I will be speaking my mind! The doctor we have an appt with in 2 days is a specialist in Geriatric Psychotic Disorders, Adult Psychiatry, Dementia, Geriatric Mood Disorders, Mental Retardation, Forensic Psychiatry, Geriatric Psychiatry, Brain Injury, Psychiatric Issues in Neurological and Medical Primary Illnesses.
His office asked for all medical records and MRIs so I am hopeful he can help. I can't believe they dismissed her from the hospital with no 'next steps' or assistance on what to do next. They just threw us out saying she is fine physically. I am so angry with the system. Thank you for your answer. I needed to speak.
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I would schedule an appointment with her doctor asap as 10 days for the psychologist is too long. She can lose a lot of mobility staying in the bed that long. Hopefully, her regular doctor is a geriatric doctor. If not, and you're unsatisfied with what her regular doctor says, make an appointment with a geriatric doctor. They are more qualified to deal with elderly patients and their type of problems. A doctor needs to evaluate what medicines she is on and see if one or all of them are causing her to feel tired or not well. Personally, unless she has mental issues to deal with, I cannot see how a psychologist is going to help her. Good luck!!
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