My mother is 69, a three time cancer survivor, three heart attacks, and a stroke. Since her initial diagnosis of lung cancer ten plus years ago, she has been on and released from hospice twice. We are told her cancer is "still". She lives at home with my sister, who is her primary caregviver, I live around the corner and help out when I am able to. We actually are so at a loss lately. Her weight has not been above 75 pounds in over two years. She had her stroke a mild one in the spring, but is very mobile, and her speech was not impaired. However at the time of the incident she would not consent to any further tests (including an MRI) she takes the same attitude with her oncologist, who has been prescribing her pain medications for many years. The last several months, since a move, she has experienced episodes of incontinence, forgetfulness, confusion (where she is, the month, where her other kids are, etc) She has even tried to leave the home in the middle of the night. Getting her to eat anything substantial is a tremendous challenge. She'll go days existing on milk and Boost drinks, then have a few days when she'll eat actual food. Her medications make her constipated. She is on morphine and oxy's, as well as an aspirin regimen, a bp med, and very recently Prozac. She is also O2 reliant. Although, she often "fiddles with the knobs" on her machine, resulting in too high a dose of oxygen (we have since removed the knobs)
She speaks often of dying. Being ready to die. Being afraid to die, etc. She has horrific nightmares. And then...some days she's just fine. Our problem lies in that we don't know what the source of her symptoms are. In all the research I have done, I have narrowed it down to pretty much anything. Have a call in to her oncologist now, and she was recently seen by her gp (who tested her for a UTI, which she did not have)
Has anyone experienced an onslaught of issues similar to ours? And if so, any and all advice would be appreciated. Since she finally consented to my sister and I as her medical proxies, we have decided to ask for the tests she denied while in hospital last. How are we supposed to know what symptoms are attributed to what diagnosis?
Kind regards, and many thanks.