Mom has Parkinson's dementia, new here. What can I expect?

Jeanne, the Neurological Institute has a sleep disorder clinic as well! I'm sure that will be on the agenda...

Mom has had Parkinsons for over 10 yrs. She has some mild dementia and takes Aricept which seems to have helped at least in progression. She does pretty well when keeping her in familiar settings. She was having more and more falls and required me and helpers to stay with her. We had her stay with us temporarily and that has turned into full time for 2 yrs now. She did an eight week stint in a rehab/assisted living and though the place was beautiful it was not what we wanted for her forever....it was certainly hard for her to get her PD meds on schedule which was crucial for her improvement and care. Even though I got rest at night, I was there 2 times a day and had to constantly stay up with her meds since she regularly didn't get them as scheduled. The facility usually gave meds early morning and again at night and that varied from 8-11pm....not good for PD. I've had to plan ahead without making major decisions too quickly. PD and Dementia has many twists and turns. We too have a 2 story house and mom lives in our den. At first I felt bad, but she slept in her recliner at home for years because it was a lift chair and she had trouble getting in and out of her bed so she lived in her den at her home also. She has always been a home body, so she seems pretty satisifed for now in ours. I wish a group home was an option for her at times, but don't know of any in our area. Her assisted living rehab stint was lots of work for me unfortunately and she didn't progress alot due to them doing most things for her, (bathing twice a week, changing her clothes, briefs, etc.....they didn't have time to be with her and let her do anything on her own..) They flew in, changed a brief, got her out of bed, and flew out.....she became reliant on them doing her personal care. This is just how we felt and how things worked for our family. Like previously stated everyone is different and everyone's progression of PD and dementia are different. By the way, you will find that similiar if not same meds are used for PD, dementia and ALZ. Demetia with PD isn't uncommon. Wishing you the very best. Get help when you can, give your dad a regular day off by finding a sitter if possible even if it's for only 3 of 4 hrs, and lots of hugs. It's sometimes a day at the time, a week at the time, while being aware what could be in the future. You are not alone....