Mom's doctor said her brain is paralyzed internally from different parts. What should I do? - AgingCare.com

Mom's doctor said her brain is paralyzed internally from different parts. What should I do?

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She has dementia. She moves her whole body even if we call her name she opens her eyes BT d'nt speak or face expressions. Plz suggest what should I do ? Someone suggests me to give coconut oil with her feed. Plz suggest hw to normal her.

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Sorry, but with Dementia/Alzheimers you don't improve. There is no "normal" anymore. I agree, you need to talk to a doctor who can explain, in layman terms, what is going on with your Mom. Ask him if she can improve with medication. Do not give her something without discussing it with the doctor first.
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What kind of doctor is she seeing? A neurologist? The description the doctor gave you about having a paralyzed brain sounds rather odd to me. Was he trying to describe brain damage? Whatever the reason, I would ask for more information about the tests that were done, the diagnosis and prognosis. If the doctor isn't sure, I'd see a neurologist who could answer the questions.

Did your mom have dementia before she had this incident that took her to the hospital? Is the doctor talking about therapy? There are so many things the doctors will have to determine.
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It sounds like you need to have a real talk with the doctor. They just said "her brain is paralyzed internally" and let you walk out the door? Sometimes you have to be right up in a dr's face and ask hard questions.

Also, the internet is great, but often overblown with ideas and solutions. I highly doubt coconut oil will do anything---people who think they know how to "heal" with these natural oils can do a LOT of bad stuff to people. (My SIL Dr. works in the ER at times and says he's seen amazingly bad reactions to people injesting/aspirating these "natural" oils.)

You need to know what is going on: is she going to improve? Is this the new "normal" and you need to adapt? Do you need to move her to a facility now? All questions your dr should have addressed. Make a "sit and chat" appt with the doc and ask a lot of questions. (Write down beforehand all the questions you have). If they refuse to see you and talk about treatment, FIND ANOTHER DR!! We forget that doctors work for US.

I'm sorry for what you are going through. Get some information and that will help you to understand what to expect and what to do next.
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I am so sorry. It is such a difficult time for you.My thoughts and prayers are with you.
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She is just in the final stages of dementia and unfortunately, there is nothing you can do to stop this horrible disease. Keep her comfortable, love her and know we are in the same place as you.
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Hi there Shehla, this very thing happened to my Mom 10 years or so ago, she had Bronchitis (bacteria) went to the Dr for it, they gave her a flu (virus) shot which basically did not jive with the bacteria. I had spent the night with her and next morning her face was sagging on one side. Called EMP and went to hosp. Different Dr said she had Gillian Beret Syndrome which is caused from the collision of the bac. and the vir. and it paralizes the organs of the body including the brain. You might want to suggest this as usually it will attack the lungs first. Seems almost like an alien attack of some sort huh! Now my Mom has ALZ and even she thinks it is because of the GBS. This is a neurological nervous system condition...look it up http://www.ninds.nih.gov/disorders/gbs/detail_gbs.htm
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Your profile states your mother has alzheimers/dementia. Has she also had a stroke?

This is really a medical question that should be asked of the doctor, or the nurses. Also ask if there's a support group sponsored through the hospital, or if they know of other support groups that you could join to learn more about how to communicate and care for your mother.

I'm sorry to read that she's in such a difficult situation; I hope the medical staff can help you find ways to communicate, such as using a white board, a board with pictures, etc. I did that when my father was unable to speak b/c of his trach.

Unfortunately, it might also be the situation that dementia has progressed to the point that the necessary neurological activity to think and process thoughts has been lost. I don't want to be discouraging, but be prepared for not so good news or advice from the staff.
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