I just found out that my mom has stage 4 NASH cirrhosis of the liver. I am so overwhelmed with the quick onset symptoms that she is having. She is deteriorating quickly. I have so many questions and seem to be getting so many different opinions of comfort measures. I need clarity if anyone has dealt with this specifically or a loved one with this condition. They want to do the TIPS procedure but they said her brain may decline afterwards. Her mind is sharp now. I am torn. Should we go ahead or wait? Should I do this to help with fluid buildup? Will this cause brain issues? Any suggestions about liver failure or guidance? I am so heartbroken. This is my last living parent and family member. :(
You may want to consider hospice. Other than a transplant I don't think there is a cure for Mom.
The loss of “the last one” is a horrible experience, and you have my sympathy. I’m also dealing with it, and the pain is indescribable.
You seem to have reached a point in helping her where there is no good solution. At some point when caring for the very elderly and/or the very ill, we all hit a point where you have to choose among treatment and care managements in which you know you cannot expect a good result.
When you get to that point, you have to consider as many options as possible and aim for a choice that MAY yield a positive or even neutral result, THEN FORGIVE YOURSELF FOR MAKING THAT CHOICE.
In spite of meticulous attention to avoid pressure sores, my LO developed one, and it became my decision (along with her Final Directives) to either request aggressive care or comfort care. Neither choice can yield a “good” result. I had to base my decision on her other circumstances, family history, quality of life…….
You are heart broken, exhausted, overwhelmed. Try to find the “quiet place” within you and peel away as much of the extraneous information as you can. If you can access someone trained in medical ethics, THAT opinion may be helpful for you.
I was EXTREMELY uncomfortable about subject of end of life medications, when unexpectedly I ran across an article which lucidly addressed the very subject. I am not “content” with that option, but I know if/when the need arises, I will be better prepared to consider it in regard to my LO’s needs as the need arises.
I will be thinking about you, and personally, I pray for l….those who suffer, and those whom I love….” and you will be in the embrace of that small prayer.
Take extra good care of yourself, and be at peace with your decision making.