I bring this up as it doesn't look like there have been any postings on the subject in awhile.
My dad is 92 and was diagnosed over a year ago with 'dementia'. I finally asked his geriatric psych a few months back if they had ever determined what kind. She showed 'mixed dementia' in her file but had told me months earlier that she suspected DLB. We had to take dad to urgent care this past week and then they referred him to the ER. He was having swallowing problems. They aren't really sure why but they did not feel he had a stroke or anything. I noticed on his last visit to his primary care doc that they showed 'Lewy Body Dementia' in his file. I know sometime back that they did some blood testing that included vitamin work so I'm not sure if that had something to do with the diagnosis. I've been doing some reading about this and really, he has every single symptom except the hallucinations which may have happened years ago before I was this involved with his care. He has never said anything about this.
I'm not sure how many others have dealt with DLB. The ups and downs of this disease are really, really hard. He will have some days when he is totally 'put together' and then drop into something else for awhile that doesn't make sense. It is such an up and down journey from day to day! I never quite know what to expect. His aggression some days is more than I can manage and he get so down right rude to people sometimes. These swallowing problems are also new. I don't know if we're advancing to something more nor do I know where we're going from here. He still lives at home with the help of part time caregivers but refuses to move. Does this disease have stages? Maybe we're at a mid point.