Just need some company and comfort. I'm in the process of dying, I'm all alone and extremely distressed. Anyone out there?

in a comment someone mentioned you have attempted suicide previously and were not successful.
🙏🏼🙏🏼 For you, I hope you find the peace you seek.

Have you been tested for other autoimmune diseases? My Cardiologist diagnosed & treats me for Dysautonomia. He told me that SS, Dysautonomia & hEDS are a triad of diseases that can be seen with MCAS (Mast Cell Activation Syndrome). Have you been tested for any of these diseases? My heart goes out to you.

Please look up endoflifewa.org for a very good detailed site for both VSED (legal) and Death with Dignity (legal in only 10 states). There are many resources accessible through this nonprofit organization. I've recently seen one of their live presentations and was greatly impressed. VSED is not to be tried alone ; you need comfort care on the journey. If you cannot get that help you should definitely reconsider your decision to VSED.

The process of VSED:
You cannot do this alone. You will need 24-hour care during this process, and ongoing hospice care or oversight by your physician. Begin by discussing your end-of-life wishes and concerns with family, caregivers and your primary physician.

Not sure, with all your symptoms of Sjogren's that you are emotionally and mentally able to make a decision to commit suicide by not eating and drinking.

Concerned that you will do more harm to yourself and fail, ending up in the hospital again, starting at the very bottom of life's choices, making it harder on yourself.

Your decision to do this alone when it cannot be accomplished alone is only one indication that you are not thinking straight.

A person does not have to die alone, or be extremely distressed while dying.
Keeping in mind that you are doing this to yourself....

Will you consider reversing your decision to a later time?

Alone,
Have you read a blog called "Diary of a Sjogren"?
Achieving Goals While Being Chronically Ill
by Rena Newman | September 13, 2021

Have you been in contact with the Sjogren Foundation?

Keeping you company will require your participation. Let others know you are still here.....

What time do you get up and out of bed, if you do?

Call Adult Protection Services. Tell them what you said here. They can investigate and hopefully contact your Dr.

Alonenscared - You are not alone. We're here. Your loved ones who have passed are around you but you just can't see them.

The sick and ravaged body you have is just a temporary shell that houses your soul which is pure and perfect.

If it's really your time to go, may you cross over in peace. But if you still have a purpose to remain on this physical plane a little longer, may you have the strength to get well and fulfill that purpose.

I feel your pain, as I am in constant pain myself. The difference is even in constant pain I do not want to die. What is beyond this existence? Please get some help , if you are not terminal find a good Dr, ( which in my case is not easy). I hope you find peace in this life, and do not give up.

Sorry that you are having such a hard time. Have you ever reached out for help from a therapist, etc?

Sorry that you have Sjogren's. The dry mouth sounds very difficult. I imagine you have tried meds or other things to try to improve that situation?

Will you not consider a PEG tube? It seems justified in this situation.

Alonenscared,
Are you making a suicide attempt by VSED? (Voluntarily Stopping Eating and Drinking).

You have posted a failed suicide attempt in the past:
"I was on my deathbed in October of 2019 but my former friend threw me under the bus after telling me how to exit life on my own terms. I ended up in hospital where I was brought back to this misery."

Call a suicide hotline, or your psychiatrist and get admitted to a psychiatric facility.

Even though some caregivers on this forum are mandated reporters, no one has the ability here to intervene on your behalf.

So sorry for your illness and pain. But you are not terminal.

I am so terribly sorry. What can I do for you?

Severe Sjogren's Syndrome, severe malnutrition from inability to eat and digest food. My mouth doesn't produce any saliva. It's extremely uncomfortable and I'm having a hard time understanding what I did to deserve this horrific disease. It's a very cruel disease.

I'm utterly appalled at my body's ability to keep suffering when I'm so desperate to be released from it. :(

Yes. Do you have something you wish to speak about now?

Will you be on hospice ?

What is VSED? Wish I knew

I’m so sorry you’re going through this. Who are you caring for? What is your relationship with them like?