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My son is 24. He has cirrhosis & hepatopulmonary syndrome. He has never been a drinker or drug user. We are currently going through the process of getting him a transplant. I live 3 hours away from UAB, the only place in Alabama that does transplants. He is currently on medicaid. And he is at home now. I work from my home also, but my work is wanting to let me go because of the time I have to take away to take care of him. If you can direct me in any way I would greatly be appreciated. We are on our last legs here.

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Have you asked about taking Family Medical Leave (FMLAct)?
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I am a home operator for an answering service. The main office is more than 400 miles from me. And there are less than 50 employees. FMLA does not cover me.
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Is there any one else who can accompany him to his medical appointments at UAB? Are there short term "medical apartments" that he could access during his outpatient visits? Contact the Social Worker who is attached to the transplant unit; s/he may have some resources.
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He will only have a place to stay for free after his transplant. Which is across the street from the hospital for 4-5 weeks. I don't have issues with him having somewhere to stay when the transplant happens and he is released. I am having issues with my job wanting to fire me because of the time that I need to take him to these appointment and these 3-4 day visits at a time. I am his only caregiver and me and him are all we got. What I was wanting to know, does Medicaid offer a caregiver pay for taking care of a disabled child. In case my job does end up letting me go because of this.
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Well, I think there are 2 issues here, with the second being dependent on the first.

First, if you have to continue to take time from work, losing your job will be an issue. So if you can find ways to minimize that time, or continue to do it while caring for your son, then you address the second issue, which is loss of your job.

I would also demonstrate to your company that you're trying to find solutions. Talk to the HR person or your supervisor ask what suggestions they have for reaching a compromise, such as working part-time for awhile until the transplant has been made.

You might also call United Way helpline, 211, to ask about other sources of support if you do lose your job.

I can't speak to the Medicaid issue; I'm not that familiar with it, but I assume you have a Medicaid caseworker you could call? You can also search using the search function. Try "Medicaid, payment for care." These are the hits I got; you can check them out and might find some other helpful information:

https://www.agingcare.com/search.aspx?searchterm=Medicaid%2c+payment+for+care

Good luck!
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Thank you!
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