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I have co-exhisted with the other chronic problems I have. I use medical treatment, see professional and have them under control. I have them, but am comfortable with myself living with them.


PD has gotten me very scared daily, wondering when I will get worse, what the distant future is going to look like, can I accomplish things on my bucket list, etc. How do people accept and live comfortably as mentally possible with PD?


Bob M

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Try looking at the YouTube video by Linda Olsen called If I Can Do It You Can Do It. I don't want to give away too much information about it because there is value in just watching her tell her story, but she got PD after dealing with other issues. All I could say after seeing her video in the middle of last night was WOW. Very impressive and it left me with a smile and inspiration. This was her presentation last month at the Davis Phinney Foundation Victory Summit. (BTW Phinney is a world class professional cyclist and Olympic medalist who developed PD.) Live your best life TODAY. A fellow in my PD support group has had Deep Brain Surgery for the PD. Oh, and by the way in the last few months he has gone, assisted, on a parachute jump and paragliding. Are those things on your bucket list? There is a lot of life left for you. Make the best of it that you can.
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I am 71 and a classmate of mine has lived with PD for 25 yrs. 14 yrs ago he was still driving 45 min to Babe Ruth games to watch the kids play.

His speech was effected at that time. Lately his is walking with a walker and having Dementia problems. His wife is his Caregiver and was able to hold down a full time job till she retired. A couple of men in Church had it later in life. One lived till 87 I think the other till 90. Wives were their caregivers. All had extended family.

I think PD is different for everyone. But u can't allow it to stop you. All the men I mentioned kept going as long as they could. Two remained active in Church.
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In my area, some of the  major hospitals used to have good support groups, for  a variety of conditions.   I don't know if that's still the case b/c of the pandemic, but a support group would put you in touch with others, and at least you wouldn't feel all alone.

You might also want to ask the doctor who diagnosed this what you can expect; some cases move and progress slowly.   I'm wondering about this progression, especially since you were D'X'ed well over a year ago. 

Another thing to consider, to ensure the DX is correct:  my father was diagnosed with it, started on med (I can't remember which ones right now), and a few years later saw a different neurologist who said that he did NOT have PD, but did have an essential tremor.    But I never saw his hands shake, never.
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Have you looked into the Parkinson’s Foundation and/or Michael J Fox PD websites for further info and support? I’m sorry you’re dealing with this
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Bob--I am so sorry to hear of this DX. Do you have family? Close friends? You will need to lean on them eventually.

As you read through the many posts here about PD, glean from them the information that may help you to decide how to proceed.

All I can say it, do what things on your bucket list that you really want to do NOW. Live in the today.

Make your will/trust and put that to bed, One less thing to worry about.

Others will have better ideas and info. My daddy had PD. It was a long illness and he stayed pretty OK for a long time. You know it's not going to be pleasant, but then look at Michael J Fox and all he's accomplished.

Bless you & Hugs--
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