Spent time at the SNF with mother today. Got to observe a speech therapy session, and talks with both the psychiatric NP and the facility doctor. The short version is that she demonstrated some cognitive deficits in speech therapy. Had told the therapist the previous day her name was something different than it actually is. Today she could not tell the therapist where she had lived before the hospital stay. and then the psychiatry NP says she’s pretty sure she has mid stage dementia. I was very careful to point out that up until the hospital stay she was able to carry a conversation and Cook, etc. But had psych issues made bad choices, etc. That I was not convinced this isn’t just temporary delirium. The NP said most of these people that have delirium actually have dementia that has just been uncovered. She found the fact that my mother’s daddy had Alzheimer’s plus the fact that this is mother‘s fourth episode of post hospital mental status change to be significant. She plans to do formal testing in a couple weeks when mother’s medical issues are better controlled.
Mother then suddenly out of nowhere became agitated. And looked at the facility doctor and demanded a private conversation. And again she was being belligerent. She had to emphatically tell this doctor that some random person on the other side of the room was somehow related to her ex-husband and this was a big deal and a big problem and a secret. So she flat out, demonstrated a delusion right there for the doctor.
I had some hope. Hope that I can just get some long-term Medicaid. She’ll qualify and be able to stay in this nice local facility. These hopes are being evaporated. This evening they called me several times because she had started to be very, very agitated and abusive to staff. they couldn’t get her to sit still and were afraid she was going to fall. She started to be belligerent about cigarettes and some smart ass. Nurse acted like she expected me to hop on up there and bring her some cigarettes. I said no I cannot do that. She is on oxygen. and do people really do that? And then the next phone call from the same facility number was my mother herself. And she was extremely ugly. And asked me if I was enjoying the games I was playing. In her horrible mean ugly tone that has been that way my entire life. And then she said “that won’t end well. “. They wanted me to come talk to her and I refused. A few minutes later, the next phone call was a different nurse, a nicer one, saying mother was upset about her dog and wanted to know where her dog was. I informed her that the dog was with me as was previously agreed as our plan if mother is ever ill and the dog needs care. I provided reassurance that the dog is in great shape and happy. I offered to speak to mother on the phone, but mother declined because she was in a snit. I told that nurse they need to get some med orders for the evenings. She said she was working on it.
my concern is that this is a SNF rehab unit. She is disrupting the whole unit. If they can’t get this straightened out, I have a feeling they’re gonna ship her off to geriatric psych unit. And from there, I don’t know where she will stay long-term. She’s not staying with me. I certainly can’t manage somebody who is sundowning. I really shocked that the facility does not seem to have as much of a plan to manage her. But I think she might need a psych ward at this point. I don’t even know if memory care would work. But again, she has a PICC line so that will be a challenged place. I am smooth worn out. I’m about ready to give guardianship of her to the state. I haven’t been able to do it up to this point, because she’s not been declared incompetent. But I think we are there.
It's so hard to step back after investing a great deal of time and energy in our loved ones. At some point it's best to let the river run where it will. This is a holiday - Independence Day. Stop answering the phone, mentally declare your freedom, and see what happens. Good luck to you, and pat yourself on the back for doing the best anyone could do.
On a serious note I totally agree I hope you take this advice Oedgar you've been thru it and then some 💜
What is the long term goal with mom and her care? Really? Are you hoping for placement? Are you hoping for in home care? What exactly do you want to happen?
Unfortunately, one day can make a world of difference in the elderly, things turn on a dime and the suddeness is often a hard pill to swallow. It's like an old rancher that rides and is active every single day walking across a room and collapsing, only to discover that his hip broke spontaneously, hard to see a life changed so drastically in an instant, could this be the situation you find yourself in with your mom? I would bet that the NP has decided that you are in denial of mom's actual condition, is that going to assist or hinder the long term goal?
Step back, at least for the weekend and really search your heart for what the end goal is. Then hit things fresh on Monday, working towards the end result you desire for mom's care.
You have gone above and beyond . Time to pass a large chunk of the burden to the facility . You are actually lucky that there is a Psych NP and that testing will be done . At times I’ve dealt with hospitals and rehabs that said that had to be done as an outpatient after discharged , only to have elder refuse to go for cognitive testing once home again . They said take them home first and see if the delerium passes when back in familiar surroundings . I agree that delerium in the elderly is often dementia uncovered .
It is hard , watching this all come to a head , after what you’ve been through , and feeling burnt . It’s like a volcano erupting, you have no control where the lava lands . It is ok to say you have done enough and let others take over .
You will need to step back from it.
Tell them to give you a buzz when she's declared incompetent to make her own decisions, because until then there's not much you can do here.
These, currently are all medical issues you cannot control.
Stop trying to be the solution in a situation you cannot possibly control or even change in the slightest.
Take a few days off from visiting.