We made the change because my children were concerned about the effect caring for him was taking on me. He was diagnosed 8 years ago, is 68 now, and has been declining rapidly over the past 2 1/2 years. The disease has taken a big toll on him physically, as although from appearances, he seems quite healthy, he has significant trouble standing from a sitting position, moving from a chair to a wheelchair, walking, and getting in and out of bed. He was assessed yesterday for some physical therapy at my request, as he has quickly declined in his ability to move around, but it was suggested that because of where he is physically and cognitively, Medicare will probably not want to cover services after the initial 2 to 4 weeks. I wanted so to keep him at home with me through this journey, but because I had a back injury a couple of years ago due to severe osteoporosis (I crushed a vertebrae from a fall), my family felt the memory care was the best answer. I have tried for 3 months now to come to peace with the situation, but I am not sure this was the best decision. He has fallen 4 times since the change, his behavior escalates often to agitation and he is regularly given medication to calm him down that causes him to sleep alot. Whenever I come in during one of these episodes, he calms down within 5-10 minutes with no medication. He is also on meds for hallucinations and paranoia, which I have no objection to. But I have not been satisfied with his personal care at times, as I find him soaked through to his clothing, or his bed missing linens except a sheet for him to lie on and a blanket to cover his body. He lost 14 pounds in a little over a month being there, and when I discussed this with the medical staff, an appetite stimulant was suggested. I was against this, as his problem is not appetite, but that he needs assistance when eating. Most of his food was ending up on the floor. I am there for at least one meal a day to help him, but I have requested assistance for him when I am not there. All this to say I still feel that he and I would both be so much better off if he were here at home with me so that I could control all these things. But physically I am not able to get him up and down. We have LTC which has covered a significant portion of the memory care but I am still paying a lot myself. However, looking at the cost of in home care and what my LTC would cover for him to be at home which would be 3 hours per day, I still don't think I could personally pay for more than 5 hours per day myself. Is there anything I have overlooked that possibly would provide for me to be able to bring him back home and allow me to oversee his care? I am not sure how hospice works or if it could help to provide enough for me to fill the gaps. I am just so sad and frustrated that I have made this decision to entrust him to someone else's care, yet I feel he is not receiving the care I could give him at home if I had more help. Am I being unrealistic and irrational here? Any thoughts and suggestions would be so appreciated.