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We were advised that Hospice would manage the diagnosed life ending illness. In our case that was Parkinson's. We were also advised that Hospice would not manage or be involved in non life ending diseases like diabetes
Suddenly Hospice has advised that the diabetic meds would cease and there would be no more blood monitoring. This seems contrary to the original parameters. Does this make sense? Has anyone had a similar experience?

I would myself be very upset if they dropped the meds with no explanation or notice. I would contact a different hospice in your area and discuss.
‘Some people live a long time while on hospice and some diabetics feel awful when their glucose isn’t controlled.

To me, they are out of their lane if this is not the meds they are responsible for.
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Reply to 97yroldmom
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From what I just read, the may be stopped if the person is actively dying. Otherwise, no, they are continued.
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Reply to JoAnn29
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97yroldmom Apr 23, 2024
Joann, if she is actively dying, then hospice should be on-site more often is what I’ve read. They get a boost in compensation during that period or did last I researched.
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experiencing end of life is hard.

Tell me why at the end of life with death near, you want to continue what is essentially an unnecessary medication? What do you think will happen exactly?

Accepting that your loved one is dying is difficult. It’s not your fault that your loved one is going to die in the near future.
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Reply to Southernwaver
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Type 1 or Type 2 diabetes?

And is he insulin dependent?
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Reply to notgoodenough
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A couple months later I ran into the caregiver while moving my friend out of her apartment. He saw me, and asked if we needed help .. :)
what an angel..
so, if you feel overwhelmed, with your situation, do look into a caregiver. One man came in. He was nice and all, but my husband was a big man. I needed someone a bit more stronger to maneuver him easier.
Before the caregiver, my husband was irritated. His body was shutting down, and I accidentally forgot the meds in sequence, and that is so important. He didn’t need to suffer from my mistakes.. it was hard.. at least with the caregiver there, I was not alone… I had the best help .
Hospice is good, but they are not there long enough. They are there for an hour or so, then gone…
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Reply to MAYDAY
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Hospice is END OF LIFE CARE..
hopefully with dignity.
You want to make sure they are comfortable.
The hospice team I had for my spouse had:
chaplain, musician, nurse, and a doctor, and once a week for someone to come in and wash him.
My friend said I needed more care than what hospice would provide. So she asked hospice for referral for a caregiver. This man came in, said good morning to me, and then directed all his attention to my husband. He could start by a quick bed bath, face wash, administer the medications on time and log it in. Oh what a difference!
I tried. I failed. This man did not skip a moment. The medications that gave him comfort and less pain were in sequence. He explained to me what my husband was going through, and why..
I wished I had known a week or so prior to when my friend said I needed a man to help care for my husband. He turned him, cleaned him changed him . He was so peaceful. I did not know how to do these things with grace and ease. I cannot thank his gentleman enough. Hy husband was in good care and peace. The caregiver just gave me an extra layer of help that I didn’t know I needed. What a blessing.
If you feel overwhelmed, hire a caregiver to come in for a few hours a few days a week.
yes, it was out of pocket pay.. but we needed it. I didn’t realize it.
I wished I had known sooner about buying an extra layer of caregiving. He would have been comfortable during this whole process. It was way too much for me. I thought I was doing ok… hindsight..NOPE. I tried, but I wasn’t trained.
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Reply to MAYDAY
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This is true. They won’t provide diabetic care because they’re only there to provide comfort care for end of life. The understanding is that your loved one is dying and their job is to help them pass comfortably. Providing medical care to prolong life isn’t something they will provide. You can have a provider outside of hospice help with the diabetic medication and care but hospice won’t have anything to do with it. My father was on hospice care for almost a year so I just dealt with this. They stopped most of his heart medicine because it wasn’t part of the end of life care they provide. My friends mother was also on hospice and she had diabetes. They discontinued all her diabetic medications/treatments. I know this sounds awful but they don’t want to drag out the process of passing which I can actually understand now that I experienced it with my father. The first hospice company he was with was doing whatever they could to keep him alive so they could continue getting paid to care for him. I was told by our private care providers that they were making him suffer longer than necessary, which I had to agree with. He had absolutely no quality of life. He couldn’t walk for years, he was in diapers, and he was miserable. He would constantly say “This is my life? All I do is eat, poop, and sleep. Why am I still here?” It was hard to watch and he had started to get really mean towards my mother. Constantly making her cry which I know isn’t how he wanted to spend the end of his life. I switched him to a bigger, more well known hospice company, that wasn’t so hard up for clientele. They almost immediately changed his meds and stopped a lot of them. He was made very comfortable and then he passed about two months later.
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Reply to Dawn442
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Socrealtor Apr 22, 2024
I understand and don't expect Hospice to provide diabetic care. It was presented to me that we would have to manage his diabetes outside of Hospice since it is not something they deal with. I got that.

But then, Hospice discontinued his diabetes meds without discussing with me. I am POA. That rubbed me the wrong way. It's hard not to see this in a negative light.

I feel that family would blame me for his death if I stop the diabetic meds after he has been on them for over 30 years. An abrupt stop does not seem kind or reasonable to me. As I see it, at the least, a consultation was in order.

This is not easy.
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No experience sorry.

I found this online - from just a random Hospice Service:

"Patients with Type 2 diabetes in hospice care will have their medication reviewed and they may be able to stop taking insulin as high blood sugar at end of life will not cause additional complications, and low blood sugar symptoms caused by continuing to take insulin can cause additional discomfort".

I would want someone senior in the Hospice Co to explain exactly what they are suggesting & why. To explain how it will effect my LO & to explain it in a way I could understand.
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