With recurrent and chronic acute kidney injury, the only options available for my 80+ year old spouse was dialysis or no dialysis. Dialysis was out of the question, considering not only advanced age, weakened physical condition, comorbidities which include debilitating cancer, and the fact that my spouse refused the treatment. So, we decided to do in-home hospice for as long as we can. I have an adult daughter who is divorced, lives alone and has sporadic employment. She has committed to being the primary caregiver while I manage all matters related to household finances, full-time work, and the like. We want our loved one to be comfortable and cared for at home for as long as there is time left. We are prepping our home for this mode of care (bed in the living room with privacy screens, access to a nearby bathroom with a shower chair (and/or, a bedside commode if needed),
My hope is that my daughter is ready as well as willing to help me and help the care-workers as well. We have talked a great deal about what this change will mean for us all. Life will be forever different, and due to COVID-19, our home is a sanctuary where no one other than healhcare workers will be allowed inside.. but,
Are we making a mistake?