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She needs 24/7 care and two siblings are doing that. Both are worn out. She is becoming more and more unable to do anything to help herself. She needs help with wound care and personal hygiene. We cannot afford to pay for a caregiver for what the going rate is in Tarrant County.

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Reach out to your mom's physician and request a home health or hospice referral. The local hospital should have home health and / or hospice nurses who will come to your home and conduct an initial assessment and treatment plan. Medicare, medicaid and private insurance will pay for end of life palliative care. It is usually based on whether the patient is facing the last 6 months of life and cannot care for themself. They are a great source of respite and grief care for the family caregiver. Should your mom live beyond the 6 months, the care is merely e tended. Im facing the same thing with my mom. I have no siblings to share the weight of this rough time. And so far i have not hired a caregiver. I recently got my folks house sold and had to move all of their furniture, yard stuff, garagd and Dads shop to my house. My place is so cluttered inside and out that im trying to get this place looking more acceptable and safe prior to contacting her doctor for a home health or hospice assessment. They do look at such things: Probably #1 is a safe environment for patient. Nothing to trip on, hurt themself on. You can buy a cheap baby monitor as well as a call button. Less than $100 will buy both on Amazon. The call button I got came with 4 call buttons and one pager. Ive placed the buttons next to her bed, in the bathroom, next to her chair and one to wear (she already lost that one). Keeping her room clean while keeping her fed, showered, in clean clothes is proving to be harder and harder and an everyday job. The hours (needs) can change daily. So this is my life. I shy away from the word burden, but it does feel that way at time. Truth is, you can put any word on it, it doesnt change the fact that this may be hardest thing you ever do. Overwhelming at times. Do yourself and your mom a favor by working with her doc and discuss that hospice referral. The very best to you.
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Palliative care is NOT a caregiving services. They do not provide 24 hour care, it is essentially medical care in home with a couple baths a week. Maybe a volunteer for a couple hours here and there, however, they can not do hands on care, they can only offer meals or drinks prepared prior to their arrival and be a companion.

Unfortunately, to grant her wish of staying home means you guys are it for the majority of the time.

If this is too much for you all, it is time to talk to mom about alternative care in a facility.
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PeggySue2020 Apr 16, 2025
My dad was on palliative care through Kaiser. He got doctors and pt but no shower or toilet aides. Once he transitioned to hospice, the doctor visits were replaced with a once weekly visit from an rn and two weekly visits from bathing aides.
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The Alzheimer's care facility my mom is in uses Kindful Care and another firm out of Dallas of which I did not get the name. So far, I'm very impressed with Kindful. They're actually a hospice firm but palliative care is part of their service. No idea if they offer services in home. What my mom qualifies for, Medicare covers.

Kindful is based somewhere south of Fort Worth and apparently covers a large area of north Texas.
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See if your parent qualifies for home health through their Medicare insurance. Some of the agencies offer palliative care instead of hospice. One of my nieces was offered this for her DH by one home health company she spoke with. Palliative not because the patient didn’t need hospice but because the company didn’t offer hospice.

This is just a small amount of help, but it is help. A nurse coming in weekly to set up meds., take vitals and if wound care is needed, the nurse will come as ordered by the doctor. A CNA coming several times a week to bath the patient, change their bed linens, give them a shampoo, therapy for physical and occupational. Some offer a week of respite in a nearby facility. Just check with their insurance. Original medicare offers this for the homebound. Some of them offer palliative and advantage plans offer some version of home health. Your parent’s primary would need to order. But you can talk to their insurance and agencies and see what they offer.
I found it very helpful.
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Palliative care does not cover custodial care. However with hospice at home, she can get a few hours of care by a visiting CNA. You might ask about if she qualifies for a hospice facility depending if the wound care requires advanced nursing.
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