Frustrating!! Husband was diagnosed with Alzheimer's 18 months ago. He's 66. He continues to work, but for only 1 more month.
Long story short...
My daughters and I notice personality changes these last couple of months. He has angry outbursts, don't know what will set it off. Lost interest in granddaughter 's sporting events (which before you couldn't keep him from). Lost his temper once with our dog, yelling at her and threatening (our dog could do wrong and she's his princess, he just worshipped her).
Had an incident of road rage...nobody was hurt or injured, it was because someone cut him off and flipped him the finger, so hubby decided to 'chase' him down the freeway. Cursing and yelling at a grandchild's sporting event. I feel like he is regressing to when he was in his 20's. He had a horrible temper then. He had mellowed over years. He feels he doesn't have Alzheimer's because he can remember things from years ago and from a couple of days ago. He totally has me scratching my head. BUT his personality is changing and he has some days where he's just a jerk!!!!! It's hard for me because I don't see a constant decline, it's a rollercoaster of progression. Highs and lows!!!!
I feel like he is great at hiding or he truly tries really hard to hide what's going on. There's days I want to go back to his doctor and say ' please show and tell me all the results again from his testing' because I could explain away his 'jerk behavior ' because he has Alzheimer's....or is he just a big jerk....
He choose not to do any meds at this time.
The doctor told us that hubby was about stage 4.
But I'm confused, because it seems more personality and cognitive decline, not memory.
Has or is anyone going through this or have some insight? Sorry for long post.
We did see an elder care attorney and took care of POA and Medical POA. He is able to work still because I truly feel it's because it's a very repetitious job. His neurologist didn't tell us what kind of Alzheimer's it was, just that the MRI showed he didn't have a stroke. My husband did ask the doctor how long did he think he'd have and the doctor explained to him that the average was 8yrs. but also told him it could be 20 yrs. The doctor said he thought it would be a slow decline based on that we had noticed signs or symptoms about 2 yrs before the diagnosis. Husband is in denial some days because he says he feels so good. Other days he'll say maybe the doctor was right. He won't go back to the doctor because he feels what for? He has his diagnosis and there's nothing he can do.( these are his words). When I look up the different stages and symptoms, he has a lil from all of them.
Its a big roller coaster ride...again there are days that are fine and normal, and boom new symptom.
I did talk to my PCP and she also told me to be prepared and to watch for the anger . .....I do really appreciate this forum, it let's me to talk to others in the same situation.
A person with behavioural variant frontotemporal dementia may appear uncharacteristically selfish and unfeeling. They may behave rudely, or may seem more easily distracted. Other early symptoms may include loss of inhibition, ritualised behaviour (such as tapping or repeatedly walking the same route) or compulsions and a liking for sweet foods. It is much more likely for those around the person to be aware of these changes than the person is themselves.
Theres no steadfast rule - people go through the various stages - many in a similar fashion -but it just depends on the individual.
I am so sorry you are going through this. He is so young to have this happening. Please update and stick around on the forum. I am hoping there are others who have a more similar experience, and advice, than I do.
It concerns me that your husband has anger issues that are so out of control he is engaging in Road Rage. One never knows if someone is armed and if he is doing things like this to strangers who annoy him, he’s taking the chance he could be attacked and injured or worse.
The first rule of Alzheimer's is that there are no rules. My father-in-law was just confused but always polite and soft-spoken even when hallucinating. But, your husband is obviously at the other end of the spectrum. It sounds like he is just not accepting his disease and is reacting to it with anger towards the world. He is most likely depressed. I am sorry that he is refusing medication as those can help. Have you asked him why? Has he spoken with his doctor (or have you) to research how medications could help him?
If you are able to reason with him, talk with him and explain how impossible this situation is becoming. You might want to have this conversation in the presence of his doctor as a neutral party. Your husband, as his disease progresses, may become violent. If this happens, you need immediately to call 911.