I'm the only caregiver for my totally disabled husband. I am a prisoner of his illness. Any advice?

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I am with him 24/7. He cannot be left alone. He cannot walk, talk, think, answer phone and he is incontinent of ruin wand has a colostomy bag. He is bedbound. He cannot answer the phone, start the TV, or even change channels. I bathe him, change him, cook for him and give him his meds and daily comforts. We have no family to help. I am all he has and feeling very locked in. I cannot leave him alone, not even to buy groceries, get the car serviced or go to a doctors appointment. I am as bound to the house as he is.

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Me1000 is right. You're doing the job of 3 shifts of nurses only they get paid, they get days off, and they take breaks.

I know how awful it is to consider putting someone we love into a nursing home but there comes a time when we have to face the fact that we just can't do it anymore.
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The others are right, you either need caregivers to come in and help, or he should get more care at the NH. I asked my dad how is a NH home different for the caregivers ( CNA's, Nurses etc) compared to us being there all the time, or even most of the time ( even shifts) . He said" because the nurses are in shifts, they get breaks and days off, the next shift comes in and they can relax, you cant". And, when its your loved one, it always is harder..."

Get the help so you can take care of yourself, go to the Dr, go shopping, get dinner out, visit some friends, get some rest. Hugs and your in my thoughts
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Oh my gosh. My heart goes out to you. I had similar situation but not even near as complicated as yours. I have to agree with the other posters and maybe start with his Dr, get some help. I was resistant at first but it wore me to a frazzle and I had depression, mental break and injuries. You have way too much on your plate and cannot go on like this alone. I finally had to put hubby in nursing home as of a few weeks ago. Please post again, please get help.
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His doctor should recommend a home health care provider. They will come out, do an assessment and let you know what resources are available to him. Medicare takes care of most of the charges. The person that comes out will also give you a list of other resources in your area that may help. Good luck!
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Have you thought of placing him in a nursing home?This level of care needs to be done by a nursing staff. You can't continue to do this alone. Call your county council of aging. Google your county name and aging and you will get how to contact them. They will help you place him, and explain your options. At the very least they will help you get respite care. Is he a veteran? Then he is entitled to aid and attendence. They will supply some respite care, and give a caregiver allowance. Call your local VA clinic and set up an appt with social worker. Can you afford to pay for someone to sit with him, and give you some free time?

How is your health?
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