If you have been on this forum as long as I have you'll have encountered many, many posts from people who were told that hospice didn't necessarily mean they/their loved one was in any way close to dying and that enrolling was a backdoor way to get the extra help they couldn't have afforded any other way.
Really, we need more info. Never heard of a Hospice survivor. Getting discharged because you no longer fit the criteria yes. Where I live Hospice and in home are the same agency. If the Hospice Nurse said she could get you in home, then u need to call Hospice. A doctor has to sign off for that need. If he feels in home is not for you, he does not order it. Like I said, its a temporary thing.
Call your County Office of Aging and see if they can help you. Even Adult Protection services.
Hospice never supplies in home care. Hospice provides the following: one or two bedbaths or shower assists per week by an aid who comes to the house medications for pain management Certain medical equipment such as rental hospital bed RN once a week Clergy (usually now just a phone call) Social Worker (usually when requested and usually now a phone call).
If you are on Medicaid you may have a right to some inhome care, and this would require an MD order for same. No insurance I know of covers in home caregivers. Nor is it covered that I know of other than by some Medicaid programs in some instances.
If you require help in home you have to hire it yourself and it is VERY costly. My friend needed sitter 24/7 who did some small house cleaning and cooking. She paid 20.00 an hour for 24 hours each day. She also supplied food costs and ordered in food often. It was extemely expensive.
This is the norm today. For this Hospice gets paid huge amounts of money per patient they can get.
I hope you will tell us more about just what you were promised and by whom. I hope you will tell us more about your circumstances. I sure wish you continued survivor status!
Do you mean you got better under hospice care and you were discharged? Then told you could be placed on "in home" care which did not happen?
"In home care" has to be ordered by your doctor. Its not a permanent fix. Its usually for PT and OT. You get an aide about 3x a week to help u with bathing. Depending on the agencies ability to supply aides, you can only get them for an hour or so, not for 24/7 care. Medicare pays for the service but you will be discharged when Medicare feels you have progressed as far as you can. Medicare does offer "intermittent" care but again thats not 24/7 care.
If you need help with an aide 4hrs a day or more Medicare will not pay for that. You could see if you qualify for Medicaid but again, you will probably not get more than 8 hrs a day, and only 5 days a week.
Call your County Office of Aging and see if they can help you. Even Adult Protection services.
Hospice provides the following:
one or two bedbaths or shower assists per week by an aid who comes to the house
medications for pain management
Certain medical equipment such as rental hospital bed
RN once a week
Clergy (usually now just a phone call)
Social Worker (usually when requested and usually now a phone call).
If you are on Medicaid you may have a right to some inhome care, and this would require an MD order for same. No insurance I know of covers in home caregivers. Nor is it covered that I know of other than by some Medicaid programs in some instances.
If you require help in home you have to hire it yourself and it is VERY costly. My friend needed sitter 24/7 who did some small house cleaning and cooking. She paid 20.00 an hour for 24 hours each day. She also supplied food costs and ordered in food often. It was extemely expensive.
This is the norm today. For this Hospice gets paid huge amounts of money per patient they can get.
I hope you will tell us more about just what you were promised and by whom.
I hope you will tell us more about your circumstances.
I sure wish you continued survivor status!
"In home care" has to be ordered by your doctor. Its not a permanent fix. Its usually for PT and OT. You get an aide about 3x a week to help u with bathing. Depending on the agencies ability to supply aides, you can only get them for an hour or so, not for 24/7 care. Medicare pays for the service but you will be discharged when Medicare feels you have progressed as far as you can. Medicare does offer "intermittent" care but again thats not 24/7 care.
If you need help with an aide 4hrs a day or more Medicare will not pay for that. You could see if you qualify for Medicaid but again, you will probably not get more than 8 hrs a day, and only 5 days a week.
What "health care lies" were you told?