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I have a special needs son whom I must also give attention too when he comes from his day program. I feel isolated and mad at the world. The only thing that makes me happy shopping online but that’s no good I don’t go anywhere to wear them and the stress of credit bills afterward. Please someone out there tell me where to start and mom says she waits to die at home am I crazy? I feel her days of living is subtracting my life in the Bible god say he will restore all that’s lost but will I last that long.🥲

Hospice offers respite care. That means she goes in a facility for a week so you get a break. You can get this maybe every 4 weeks or 6 weeks--check with your local hospice on the frequency and book it. This will mean you get a week break.

Then talk to the hospice social worker about placing Mom somewhere permanently.
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Reply to brandee
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Hospice for 3 years! That is a long time. I know it happens but darn. If it were me, Mom would go into LTC if I had a special needs child I also cared for.
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Reply to JoAnn29
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Hospice offers a week of respite. Take it.
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Reply to PeggySue2020
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You start with hard work to get out of your habitual ways of acting and reacting to life, so that means a good cognitive therapist. No talk therapy. No online therapy. You need solid help to take control of your life. We cannot control your choices for you, nor can anyone, but a good trained therapist can help you break free of your choices that are self-harming and formed of habit.
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Reply to AlvaDeer
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Wow. I’m so sorry you have all THIS on your plate. 10+ years of caregiving, with an end point seemingly no nearer in sight. And caring for your special needs son. And yourself!

Would you consider a placement for your mom? You are 66 and need to stay alive and well for both your own sake and that of your son. To be blunt, it may be her or you at this point and you need it to be you. She has lived a long life and her care should not be to the detriment of others. Caregiving can eat you alive, I know.

Thinking of you and hoping you can make some helpful changes.
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Reply to SnoopyLove
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