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I am really sick of talking about this and dealing with my parents and compassionately lying to my dad who has Alzheimer's. They constantly criticize me, even though they wanted me to be POA. I don't want to be the responsible one anymore. I just want to get in my car and drive away. I think it would feel so good to go away.

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Jumary, your profile is blank so it’s hard to make any comment or give any advice. Do your parents live with you? Do you have any familial support? Have you ever, at any time, researched home health care? Have you researched facilities and/or applied for Medicaid if needed?

It doesn’t help to know that 95% of us are 100% burned out. Your feelings are unique to you, but are really very common among caregivers.

Please post, if you care to, with more information and we can try to offer better advice.
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I think most of us feel this way sometimes, especially if caregiving has gone on for years. Are you able to take some time off away from them?
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You're not alone. If you decide to go, let me know and I'll go with you.

No, seriously, sounds like you either have or you're on the way to burnout. This is serious. It will affect your thinking and your health. You have to find a way to get out and enjoy yourself. Think of something you love doing and DO IT. If it means calling a friend or family member to give you time out, do it. Truth is, removing yourself from the environment (if only one day a week) is imperative. What makes you laugh? Do it. God bless you - you are obviously a loving and caring person, but we all have our limits. If you don't take time for yourself, next thing you know you'll become resentful and angry. I'm talking to both of us. You are loved and people do care.
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Join the club. Driving away would be so much simpler. I have already missed a family reunion and I will be damned to miss my niece's wedding.
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dlpandjep Aug 2018
Don't! You owe it to yourself and your niece to be there. Find someone to stay with her and don't back down! God bless you - stand strong.
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Thank you all for your comments. I am a teacher, and we go back to work next week, which is a real blessing. I am much happier when I am working with my students. I also maintain a struct no-call-from-my-family policy except from my wife and only when it is an actual emergency.
I am definitely fighting depression. It it tough, and I am considering going to see my doctor. I have already got shingles this year from stress, and I don't want to get sicker. I just feel like no matter what I do, it doesn't make anything better. I going to try to make it minute by minute, instead of worrying about tomorrow.
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I felt like this every day my Mom was bedridden in my home for nearly 2 years. I still do to a lesser degree now that MIL is 87 and needing us every weekend. After one rough time with one parent, the next one came on board shortly after my Mom passed away. During my Mom's decline I had a spontaneous retinal detachment and operation and my husband had heart issues.
I got through it, albeit with some depression and anger issues after my Mom died, by taking it one day at a time, sometimes one morning or afternoon at a time. I try to do little things for myself as they add up. I think of it as the "bank of me" and even a good cup of coffee and watching birds for a few minutes go into that small "me bank". It helps to keep me going.
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Myownlife Aug 2018
I haven't heard that before... "bank of me". That is a good way of looking at it. Thanks for sharing!
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I totally agree. In fact, I am setting a very strong boundary and minimizing my interactions with my mother. My goal is to make sure that she is safe and has good care. But other than that, I am done. I told her the other day, that her combativeness is not healthy for me and I will not tolerate it.
She now has a PT person coming twice a week...as far as I am concerned, that's her activity and socialization. No more once a week, draining dinners...it's not worth the drive as I always left on high alert filled with anxiety. She is a very mean, nasty woman...and her verbal abuse has significantly increased.
I am in the process of looking into assisted living. If that doesn't work, then she can pay for in home care.
Once I know that she is completely taken care of one way or another, I am relocating to a place far enough away...and will continue to live the rest of my life. This all sounds horrible...but at the same time, I've put up with this woman's nastiness all of my life (I am her only child and I just turned 61) and I am done.
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shb1964 Aug 2018
amc716, I admire your tenacity and boundary setting. It doesn't sound horrible to me, but I don't know that I have your strength. Thanks for your forthrightness and honesty - I see that it is possible to make tough decisions and not look back.
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I have often felt that way, but I decided that I could not quit. Get some help so you can get a break to recharge if you don’t get help it will not work in the long run.
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Oh my , I’ve been telling God I don’t know how long I can go and I’m not in it near as deep as some of you but I know I can’t be a 24/7 caretaker . It’s my mom and my step-dad. Finally after 3 strokes I get to look at long term care for him , he’s currently in a Geri psych unit to get him under control . My mom just toodles along and tells everyone she’s bringing him home , which we all know can’t happen . She’s still driving short distances for now . I do not want to live with her . I’m the only one in the family that has been around them consistently and know how bad she is. Everyone is “fine” because she always says everything is “fine “ and I’m the one handling everything. I have to work so there is a family friend cking on her when I’m not there. After we get my step dad settled somewhere I’m hoping she’ll opt for assisted living or some home help. I’ve been around her constantly for the past month due to his last stroke and the anxiety , bouts of crying , and dread starts welling up in me a day or two before I have to go see her . I’m POA for them both and of course his family doesn’t come around til something happens to him and say they will do what I need but they hardly answer their phones and with his condition and my moms, they actually asked me when WE were bringing him home .......are you kidding me .
They don’t have much in assets and I know we’ll be looking at Medicaid . I’ve got an appt with an Elder lawyer to help me plan for them both. I look at it as one way to have to spend a little money and I don’t trust the nursing homes that much and they can’t give much advice anyway . Just want it to be over and done and them both be somewhere safe , not under the same roof with me !
good luck everyone , it’s such guilt sometimes but when you’ve never had a great relationship with someone and you are putting all your extra time to see that they are going to be taken care if and they still are nasty , spiteful, and still never think about your life - you just want to get this done and get away !! God be with us all .
There are some great books out there on dementia and if you are just beginning to deal with it I suggest you do some reading . It helped me understand them both better , made me feel a little better about not being the kind of person that can handle fully taking care of them st home , and gives you an understanding of what the future with them holds .
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Talk to your parents doctors and ask them if there is any counseling they recommend ... if you have health ins maybe seek a good therapist that you can speak to or a really good friend and/ or a great church who has free counseling for those in need of some peace of mind... it would also help to make tone for yourself to get some quiet time and meditation !!!
My mother is very mentally ill and is very difficult
to deal with .. I thank God everyday that I gave him and my church family to help me escape.. Peatera for you to find peace and strength ...
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Look into Respite?

My my mother had been critical all her life of me. But, I forgave her and moved in to take care of her until she passed under my watch.

I know now that I had done my duty as her daughter and I am at peace. Her issues where her issues not mine.


may peace be still for you.
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If you feel the need to go, GO. If you feel the need to say ENOUGH, say it! It's YOUR life, not theirs. A POA does not mean you have to be in their lives or under their roof, only respectful of what is theirs.
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I was in a very similar situation. Plus, my mother has always been critical of me and unaccepting of who I am. I am POA. It has been rough. She lived with me and my husband for 2 years. After three weeks, she began picking on my husband every single day. This is the man who invited her to come live with us, built her an arbor in her back yard, landscaped her front yard, and painted her bedroom not once, but twice b/c halve way through she changed her mind on the color!

After two years for the stress and with very little help from my brothers, I became very depressed. I spent almost three days thinking through options regarding the situation and trying to predict the outcome of my decision. Finally, it came up in conversation that she wanted to move. I used that as an opportunity to move her.

I have ave no regrets. It was the best thing for me and my marriage at the time. I still see mom twice a week and often take homecooked food.
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This job is hard and that is why you have it and nobody else does .
Call Social Services. Senior Citizen help in your community for advice . Have them come to your home to view the stress level ..
You need help now .
If you are not an only child , hand the house keys and list of duties to your family so they can understand you are done as you leave for a new job where you have your home .
No warning because they won't listen and excuses and accusations will come .
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don't lie to your dad , change the subject , he can believe whatever he wants , it is ok .. he is not who he was .
Arguing , lying are not needed if you understand that usually there is no big issue for things they are used to .
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I feel for you! Everyday for the past 12 years, I still want to run away. My 93 yr old mother lives with me. She's on the opposite end of the spectrum, not mean at all but a martyr. The constant negativity is beyond my last nerve. The woe is me attitude. Yes caregiver burnout is very real. It attacks you before you realize what is happening to you. It made me into an ugly person, someone by nature I'm not. It changed my personality. If someone would of told me long ago this was going to happen, I wouldn't believed them. I'm still caring for my mother in my house. My advice to you is take care of yourself. Change your mental outlook. Safeguard your mental sanity. Start by taking care of yourself first. It's not easy and will take some work. Recognize your parents are broken, you can't fix them. You can't control what they say. You can only control yourself and how you react to them. You do your best and leave it at that.
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This2shallpass Aug 2018
Great response! As many others on this site, I find myself in a unexpected caregiver role I did not plan for. My 88 year old mother with dementia lives with me and loves to travel down the "poor me" path. I have always tried to be a very positive person so I don't have much tolerance for pity parties. Now when she says her familiar statement "Who would have ever thought I would have ended up like this?" I laugh at the irony and respond with "and who would have thought I would have ever ended up like this!" It's like they say "If you don't laugh, you'll cry".........as difficult as it can get, I'm still trying to laugh every chance I get.
Bless you all.
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Man- do I understand. It was the toughest job I ever had to do... and the most gut wrenching. I never felt so overwhelmed, sad and alone. But I did it.. and you can too. My folks are both gone now - they passed in 2017. I am glad it’s over..for them mostly- it’s an awful disease.. I have no regrets that I did the hard job. Hang in there!! Big hugs!! People always said- “Take care of yourself..” That is easier said than done. If I had to do it over again - I would have taken more time for myself..
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Hmm, I thought about doing just that on Friday. I live in central Florida and was driving toward Daytona Beach for a work appointment. I seriously thought about just keeping driving and disappearing at the beach. My dog would starve, otherwise, I may have done it. I'm an only child taking care of a dad with dementia (living in memory care) and an alcoholic mom who lives alone and within walking distance. I dread each day and cringe whenever my phone rings.
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keepingup Aug 2018
Here's a hug, sure sounds like you need one. Do you have any support system at all, a social,safe place or person to vent? I take care of a pretty nasty person with dementia. Don't know if I'd sound as sane as you do without a (pro bono) therapist,one good friend and this website. Rest assured anyone who reads your post is sending you understanding.
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Love2Garden, I love your statement "Recognize your parents are broken, you can't fix them". OMG. I think that's a big part of the mental anguish in this caregiving situation. No, it's not going to get better, it's only going to get worse, and YOU have to watch one or two people become something other than the people who raised you, AND you get to slowly watch them die. Zippity-Doo-Dah!
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Wow! amc716 I am in awe of your response. I am an only child and have been responsible for my mother for the past 13 years since my father died. My life hasn’t been my own since. I vascillate between sympathy and anger in dealing with her mood swings. Right now she’s verbally abusive when she does speak to me. She’s in a very good AL but I always feel like I’m on edge when she’s like this. I’m 72 and I feel like my life is on hold. When she’s in a depressive state I feel sorry for her and and feel guilty when I don’t spend more time with her. I know that I’m projecting these feeling on myself, and I applaud your decision live your life. I know the feeling of wanting to get in the car and just keep on going!
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Jumary, hope you have a big car cuz lots of us want to join you on your joy ride across the country! The problem is - or at least one of them, and you know this - is that we can't run away from our problems. I'm glad for you that you'll be teaching again soon. That will provide a much needed distraction and may even make you think differently about how you teach! You'll have much more to offer your kids from a whole new perspective - something they can't get from a text book. That may help.

Also, the "compassionate lying" thing. At first, it drove me nuts, too. That's not my preferred way of dealing with things. But I realized it's the best thing for my mother. It relieves her worry about certain things - worry has always eaten her alive - and in most cases, there's no harm done in doing that. Is it that it feels patronizing to you? I felt I was patronizing Mom, but her brain simply can't process like it used to (which, frankly, never was very good). And she's a critical, negative person, too.

I share DPOA with my brother and sister - we all three have a great relationship and there will none of the typical sibling rivalry fights when the time comes to start taking action. That's a help. But I think when you enact POA, there's not much turning back, so only take that step when it's necessary.

In the meantime, there's no harm in running away in your mind... look at websites, order brochures, and plan your ideal relief trip when this is over. Maybe that anticipation and excitement will get you over some hurdles. Good luck to you.
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sidelined Aug 2018
Just had to reply about the "big car" comment - I need to be picked up too!  I am thinking maybe a caravan would be in order!
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Im a member of this club too. I am just now, setting my boundaries. I was emotionally abused by my sane and then abusive dad, one last time. I'm given up so much of my life, to help them, and now just him. They didn't ask me too, and I'm no martyr, but I'm realizing now I'm damaged, from the constant roller coaster of unknown,, coupled with arguing, and me trying to take the lead...of something I really don't want. I was never close to my Sad, but I was always close in proximity as I was close to.my mom. But..just want you to know, I've stepped back, after his last extreme outburst to me. He's old, and living independently in a retirement Villa...but doesn't have dimentia...he's always had explosive outbursts to my mother..and me..then is fine. I realized I'm pushing his buttons, as I try to control his well being. He's old, health is failing, and I'm trying to help...but it's not working..I've stepped away..for awhile. I'm becoming like my brother. Dealing with him from a distance. He adores my brother, and there's never a fight...as he's removed. So..so am I..
I feel your stress. And hope you can step away for awhile too
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disgustedtoo Aug 2018
Wise choice to back away. Being POA does not mean one has to be there 24/7 and/or take abuse! In our case, mom is in MC, she is not the issue (she refused to move in with one of my brothers or have help come in, but could not stay alone so we had to move her.)

As to your description of dad: "he's always had explosive outbursts to my mother..and me..then is fine.", then you say you realize you are pushing his buttons - you may want to rethink that. If he's always done this to both of you, were either of you really pushing buttons? Even if you did, there's really no excuse for that behavior. Verbal/physical/psychological abuse generally leads the abused to think THEY are responsible for this. NO.

Why do I feel this way? My older brother was physically and verbally abusive to me when we were young. After we left the nest, went to college and later went our separate ways, these 'incidents' did not happen since we were not "together". The few times we might get together, it would be a family thing and we were not alone together, but it was not often, so this never came up over the years.

Since moving mom early last year, he has come up (2 day drive) several times to help clearing out the condo. All the other times he was here, he would sometimes get very testy, once threw an empty box at me and was nasty at times, but, like you said, later he was "fine." I did not recognize the pattern during those 'visits', but this last time he not only got very nasty, he physically threw me to the floor twice. Hurt my leg, seriously bruised my ankle. I ordered him out of my house. While packing he kept coming back to yell nasty things at me. Extremely nasty, verbally abusive things. He could not just pack his stuff and go. He should KNOW that I would be mad about being thrown to the floor, but no, he had to get the loudest nastiest words out and blame me! He had another week planned up here, so he stayed at the condo. A few days later he started coming back here with boxes of stuff from mom's - I would NOT answer the door (first time he got to my driveway just ahead of me - didn't realize it was him until he turned in, so I went to a neighbor's house instead. After an hour he was STILL here, so I went to get police escort - they had to take a statement and they wanted me to press charges! I declined saying once he is back home he won't be welcome back, ever. They wanted to call him after coming here and finding him gone. I also declined because I did not want to rile him up, just wanted him to finish his time and GO HOME!) Obviously the returns to my place were 'later' and now he too is 'fine', but I am NOT. I will not allow him in my house (he came several days in a row with stuff, so I asked other brother to tell him to go away as he was sitting here for an hour or more each time! I don't want him in my proximity. Other brother only told him I did not want any more stuff.) At this point I realize this is HIS issue, it never went away, it was just under the surface all this time, so I am DONE. It is who he is. I even made inquiries about other instances - his exwife and daughter, and I think perhaps HE drove the wife away and now know he has had incidents with my niece too. I told her what happened and told her to watch out for herself! Thankfully he does live 2 days away. I have NO plan to reunite or be around him or talk to him ever again! Forgive? Maybe. Forget? Not a chance. And he will never get a chance to do this to me again!

So, if your dad does/has done this explosive thing and then is fine, this is most likely what/who he is. Don't blame yourself.
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Right there with you!
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Setting new boundaries is a necessity... so as challenging as it is, it's mandatory that you delegate some of your responsibilities to others and that may include other family members, senior services organizations, church or synogogue members, etc. The point is you have to care for yourself first... remember the admonition we are all given on airplanes, that should oxygen be required and you are traveling with a dependent, place the oxygen mask over YOUR face FIRST... Wishing you ease through this challenging, stressful and overwhelming time...
and we breathe...
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I bet I am not the only one to think this is another "Me Too" movement. You make me feel grateful that as snippy and obnoxious as my mother with dementia can be (and as forever clueless as my father is about that), he is appreciative and grateful. But I have to admit I have moments of wanting a day REALLLLLLYYYY off. Maybe you need to figure out a way to do that...and of course I realize one day is not enough. I am feeling concerned and guilty, even though they manage fairly well for going 45 minutes away for a few days this coming weekend. You need a break. Wouldn't it be wonderful if hotels would phone in to the Alzheimer's Assn or something to say we've got 3 rooms available, have a waiting list of documented caregivers, and call them and say hey...you've got a night off. Charge a nominal or not amount....
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hi i did that with my dog went for an hour walk came back she forgot that she was going to throw me out of the house ..well please pay attention it cost less than 10.00 so what you need to do is run away to walmart go to the vitamin section!! there is pills for you to give them ..i know it works my mom had dementia & now gone so it is melatonin a sleep aid so an hour before there sundown thing give them a pill usually about 5 mgs or what ever it has a fruit flavor it will calm them down & safe too ..so hang in there ..so have they been to a psychiatrist ??? you need to make a appointment to be seen so they get eval & the right kind of medicine but the melatonin will work so try it ok .. everytime i get on here i try to tell people like you that
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also get that POA it would be good to have ..do you have other family members ???? but get the pills
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echo everything here. My mother 83 y/o dementia and blind in one eye, mostly in other. After several falls, she’s had to have a spinal procedure, rehab and now AL. She’s angry, defiant, and the most frustrating deceptive person I’ve ever been around. I too, have been in a battle of wills with her with medical drs support, but it doesn’t matter. The damage she’s done to me is ongoing. She’s hiring a mover to take her back home(I can just imagine how this will turn out) and I’m backing away.
Mom trying to figure out how she will manage meds(not done too great before!) and was told she can no longer drive but did anyway. How do I stay away? Do I still go to Drs? I want to just change my name and run. Yes, I am POA, but I would expect her to change that soon. I am only surviving child.
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sidelined Aug 2018
Good morning AT1234 - chiming in here because I see how frustrated you are.  It makes your job 100% impossible when they behave like this.  So many times I never hear anyone discuss how sweet and thankful their parents (loved one) is, but mostly the same issues you mentioned here.  I think running away, even if in our minds, is totally normal.  Maybe you could seek counsel with an elder care attorney or your local Council on Aging regarding where your obligations end.... if anything if may give you comfort to know if she insists on doing things her own way, you will know what to do?  Best wishes!
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I totally get what you're saying Jumary! I have a hubby who has Huntington's - lately, I have been thinking of packing up the car, placing a teddy bear in the passenger's seat, and driving across Canada - just me & teddy, away from the problems of home - I'll never do it, but I do enjoy thinking about it!
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TracyHD Aug 2018
Hang in there Janell. I was my brother's caregiver/POA when he struggled with HD. I understand, but the self-respect you will find at the end of the journey is well work the perseverance. Take a break, get respite care, take care of yourself.
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