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You should look into In Home Support Service. I live in CA & the state pays me through the program to stay home & take care of my daughter. They look at what you do for the disabled person that is above & beyond what you would have to do for a "normal" child/adult at that age.
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You may be able to get a stipend for a few hours. You should check directly with Medicaid. Their rules are strict, but they may have something. Good luck. This is tough, I know.
Carol
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