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My mom was diagnosed with Alzheimer's a few years ago. Gradually her short-term memory declined. My fathers did too. An event happened with my dad and they were put in secured memory care. It has been a month. I have been telling them they are there because of dads heart.
That's not working any longer. It is not safe for them to live on their own. What can I say to them about not going home again?

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Hi Neelloc, This is a follow-up from my previous message. I'm glad your parents are not that far along and you still enjoy talking with them, but I'm sorry to hear about this situation you have, it is sad that they just can't go home and I wish you could take them home until they were further along with the condition.

Can they go back home under constant supervision? Maybe there's no one to look after them there, constantly. I've heard a lot about Assisted home living on this forum. What about telling them the complete truth? It might come as a shock initially but maybe they'll will adapt to it. If they have friends, relatives, neighbors, and family visit frequently.

What is that place like? what kind of space do they live in? does it feel like a home away from home. I'm sorry I'm not familiar with the setting of secured memory care place.

It's a difficult situation. I'm a inexperienced compared to a lot of other forum regulars but, is there problem telling the truth, if they're not that far along.

Wishing & hoping for a good solution for you.
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neelloc Feb 2023
Thank you!
The place is nice enough I don't have any experience with memory care facilities. I am asking for another cognitive test for them. Perhaps that would help me explain it to them.
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I always go with "When the doctors send me a letter and say that you can go back to where you lived, we will consider it". There never will be a letter.
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Hello There, so sorry to hear about your situation. lealonnie1 describes the painful truth of loved one in this situation.

Have you tried saying "you're already home", every single time. What's this secured place like can you bring all the home furniture, paintings, all home type things familiar to them into the secured place. Of course not everything but some things they may recognize. Maybe some of the music collection. This is just and idea.

I do not know how progressive your parents dementia is but, have you tried driving them around the block with their suitcases and bringing them back to the secured place and say, "we're home". Just to clarify this is not intended to be flippant.

Try these two things and please let us know how it goes.

Sorry this happened to both of your parents, in fairly quick succession, this must have been so hard when it all first began with each respective parent.

Love & Peace.
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neelloc Feb 2023
It's too soon to do the car ride. They aren't that far along yet. I will give it a try after they have had some more time.
Thank you!
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Let's not forget, when someone says they want to go home, they could mean going back to their childhood home. Back when being a child was fun and safe.

My Mom use to want to go home. She was 96 and wanted to visit her parents. I would tell her that her parents were "visiting the old county", to which my Mom would smile. When she started to ask above visiting her sisters, I had to be creative and do a fib that Mom would understand.
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I believe that you tell them the honest truth, whatever that is after diagnostic workup and you tell them it is no longer safe at home. Question now is who is in charge. Unless they are ruled incompetent in their own decisions and you are POA you have little power to act for them. I hope that you do have POA.
Again, be honest with them. Tell them what they have and that you will attempt to find housing for them that keeps them safe and cared for, but that going home is no longer an option at this time. They may rage and they may cry, and in all truth, this circumstance is worthy of that.
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-When i worked in a Memory Care Assisted Living facility, we had a few residents who would pack their bags every day, put a coat on, and go sit in the lobby area waiting to "go home." This went on for the entire year i worked there. The cgs would come get the residents for meals, then theyd go back to sitting with their packed bags waiting to leave.

-Lois was a doctor before she was diagnosed with Alzheimer's, along with her dh, and they both lived together at this MC. Every evening, Lois would come to the front desk with her pad and pencil to instruct me to call them a cab for the next morning at 9am. They were leaving to "go home." I'd tell Lois sure, I'll call the cab for you, no problem. Next day, same scenario.

No matter what you tell your folks, they'll keep repeating the same question. My mother refused to believe she had dementia and therefore, what was SHE doing in this place? I'd just tell her it was doctors orders she live there. Then she'd go off on a cussing spree about "that doctor is FULL OF SH#T" which gave me a chance to agree with her. Yes, he's the bad guy etc.

You may have to change your reasons up a bit from time to time. When mom was obsessing over her mother and accusing me of "hiding her", I'd tell her grandma was living in Florida bc it was too cold for her brittle bones in Colo. since she'd have been 137 years old. Snicker. Then she'd squint at me and the cussing would begin anew. "You're LYING and you're FULL OF S#IT" she'd tell me. Then I'd have to get more creative with my lies about everything from soup to nuts.

Its a no win situation you face here and nothing you say will make a difference. Keep the folks distracted and ask their PCP about low dose Ativan for Sundowning. It worked very well for my mom who'd be freaking out every afternoon about all the dead relatives and where were they being HIDDEN??

Don't internalize this....that somehow you're the Bad Guy for placing them in a safe care environment. You're not. The disease is the Bad Guy, and we're just trying to make the best of a bad situation for them.

Best of luck to you.
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neelloc Feb 2023
Thank you! My mom sounds the same as yours.
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You can tell them...
*When the doctor says it is safe for you to return home we will arrange it. (this makes the doctor the "bad guy")

*It is not safe for you to go back home, you need someone to help you. I can not help you as much as you need.

But..the best advice is to try to change the subject, redirect as best as you can. This may continue for a while.
Since their placement is fairly recent the wanting to go home is understandable. Just remind them they are "home". Tell them they are safe.

If they are both upset and anxious about this there are medications that can help you can discuss this with their doctor and see what he/she suggests. Keep in mind there are problems with medications like this, a person can be more prone to falls. But with all things it is down to "Benefit VS Burden"
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Thank you. I have been telling them that for the last month. When they are sundowning, they get very confused. I have even told them I will pick them up in the morning, knowing they won't remember.
Is this something I have to keep doing hoping they will adjust?
I would like to be able to take them out for an activity eventually.
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You tell them that the doctor says that they aren't ready to go home yet.

This is called a therapeutic fib.
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neelloc Feb 2023
Thank you. I have been telling them that for the last month. When they are sundowning, they get very confused. I have even told them I will pick them up in the morning, knowing they won't remember.
Is this something I have to keep doing hoping they will adjust?
I would like to be able to take them out for an activity eventually.
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