Hello. So my mom is in the mid-late stages of Alzheimer’s and she is very stubborn when it comes trying to get her to take a shower. I usually wash her up at the sink, but I really want a thorough clean from time to time. I have a shower chair and she still refuses. Any suggestions?
If she can sit/stand with her head over the sink, you could wash her hair that way and use a cup to pour warm water over her hair. Seems the sounds of running water can be distressing. If she will not do this, try dry shampoos for most hair cleaning. In the hospital where I work, we have a shampoo cap that is basically a plastic shower cap with no rinse shampoo in it. I warm it up in the microwave, put on the head with all hair tucked inside. Massage the scalp well. Take off cap and dry hair with a clean, warm towel.
Baths can work for some dementia sufferers who just don't like being splashed, but it could be dangerous getting them in and out of the bath if you don't have suitable aids, such as a hoist or seat.
People with dementia who are afraid of getting undressed to go into a shower or bath wouldn't be tempted by the spa approach, although Mum did enjoy me massaging her head with a very warm flannel, while she sat in her recliner with a warm towel around her shoulders. She often fell asleep :) I would then use a hairdryer on a gentle setting, so that it didn't alarm her.
Educate yourself on how the brain changes and processes incoming information. For instance, she may fear water ... feel like she is going to drown.
You give her sponge baths and show compassion.
You develop compassion by studying what dementia is and how to communicate with a person inflicted with it ... to keep them as calm as possible.
Google Teepa Snow. Watch her You Tubes, buy her books.
And get this one:
The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss - Johns Hopkins Press Health Book
After 35 years, still the indispensable guide for countless families and professionals caring for someone with dementia.
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My mum hated getting wet and she always felt cold. She washed (with a carer's help) every day sitting on the edge of her bed and a bowl of warm water on a table. Using a flannel, she washed from top to bottom every day.
She used to have her hair washed at the sink, until she could no longer bend over. Then, I looked up information (which is how I found this site) about how else to wash her hair. It was short and I was able to do it with a bowl of hot water and two flannels - one for washing and one for rinsing, just as Mum was washed in the morning.
The secret to washing hair this way is to not use a lot of shampoo, so there's not much of a lather.
The idea that we need baths or showers to be clean is a fallacy, although they do make us feel much fresher.
I would recommend using cream cleanser (such as Johnson's baby lotion) on limbs, belly and back, in order to look after the skin.
Have things set up in advance --everything you need at hand: clothes; cloths/towels; new depends, shampoo etc.
And frankly, most of the time I have her do it herself. ?! Yes. She is capable, with MUCH instruction. I occasionally step in, to make sure we get a good job. And I do her back or super hard to reach places. But like a small child, she is capable of some of these things herself. She just needs to be told (and re-told) each step. With 'sponge' bath, there is much less water, so that issue is somewhat mitigated.
Also. I have noticed a HUGE difference in the amt of resistance if we keep a schedule. If we can keep regular caregivers (who actually do bathe her) & keep it to a set usual time/routine, there is way less resistance, b/c it is accepted as routine. Same way she grumbles about not wanting to take her morning medicine before I leave for work, but she does it, she will get bathed when done in a regular way. We still have grumbling: I don't want this; when will this torture end? etc. But while she is saying that, she is moving to do it or actually doing it, instead of staying in bed. And it's less strident grumbling than previously.
As for cgs, instead of verbal or written instructions of 'she's not going to like it but you still have to do it,' I have had MUCH more success when I demonstrate it, with them in the next room where they can hear and observe some (privacy). When they see the kind of pushback I get, & that that is normal behaviour for her, I have found them to be much more likely to proceed in the same fashion themselves, rather than let her decide not to.
However. There are still cgs (professional caregivers) that refuse to make them do anything they don't want to do. I only make her bathe three times a week. She gets hair washed once a week, which was her practice my whole life. That is as much of a compromise as I am willing to make. She needs to get bathed to stay clean. She can't go on NEVER getting bathed. But we can limit it and accomplish it in a not horrible/traumatic way for her.
Also, I don't know where you all live, but where I live, you're not getting any better trained or quality people at home care agencies or nursing homes than you are yourself, for the most part. Maybe a couple at a nursing home that has managed to hold staff. But MANY many people at those facilities are transient & not well trained generally, much less when dealing with dementia patients. I've picked her up from a 5 day respite and she's in the same clothes she came in . Never bathed or clothes changed. B/c they asked her to do it & she said no & that was that. W/ mom, you don't ask her anything. You will 100% get a no. Do you want to eat.......any meal.......now? No. 100%. Do you want to bathe? exercise? No. No. You tell her it's time to do it.
I haven't worked with the elderly, but I have lived alongside them as my mum worked with the elderly. A "bed bath" or similar is sufficient.
Our current thinking on cleanliness being only managed through showers and baths is a very new concept. It's absolute rubbish!
Try hiring a bathing aide for plan A . But often when they get to this stage they can not live with family any longer because of stubbornness. Start looking at memory care facilities for plan B.
You can use bathing sheets, ready moistened, but then again, she may not like those either. She still should be experiencing water bathing in addition to those.
You can hire a bath aide to come to your home, and you can hope for the best. They are more experienced than you are and may know some tricks to get it accomplished.
Accept that you may never get her to bathe properly because nothing you can say makes sense to her. She won't be rational, she won't be understanding of your request or have empathy for you in your exhaustion and burnout. She may become aggressive over it. She may threaten you.
Now if you were to rehome her in a facility dedicated to memory care, they have the staff numbers and training to do it. Every time. My husband in memory care is a three-person assist for baths. He continues to resist, but he is clean now. Yeah, it's a lot. But this is what you are facing, and there's no easy answer.