Follow
Share

Dad is mid 90’s and has lived in my home with myself and my husband for five and a half years. My husband will listen for him on the rare occasion that I go out, but rightly does no hands on caregiving. I am “it”. Dad has many chronic health issues and all five senses are greatly diminished, effecting daily life and ability. Mobility and balance is low/considered a high fall risk. Walker around the house (he sticks mostly to “his” area of the house and the big covered porch outside his room now), wheelchair most everywhere else at this point. A fall about two weeks ago with no fractures, but pain and some other things, resulted in his becoming increasingly sedentary (pain in lower back) and is now struggling to stand. Constant vigilance day and night is necessary to ensure safety. That being said, he is insistent on doing things for himself, but increasingly is needing help with ADLs . He sleeps much of the time (but then is up and down during the night) I am so tired that I don’t always hear him now, which is a worry and safety issue (I do wake up frequently to check on him). He has had cognitive decline in the past six months or so that is very evident off and on and increasingly more noticeable now.
In a nutshell, he is declining and may soon need physical help that I cannot give due to a health issue I have that precludes heavy lifting, and because I can’t stay awake 24/7. In home help is not accessible—no one wants to risk exposure to infectious disease he has had off and on.
I have been looking at area nursing homes and am having a hard time finding one I feel good about, but know no where is perfect. . Also, it seems like direct admittance without the hospital stay will be difficult. And with his type of insurance, and what he is usually hospitalized for (infectious stuff requiring a private room, or needing IV antibiotics that skilled nursing doesn’t want to accept because of cost with low reimbursement), no one would accept him post hospital in the past. I am looking at them (touring, looking up inspection reports and reviews, etc), with idea that we could try direct admit now while those obstacles are not part of the deal—but if it doesn’t work, try private pay post hospital? He has enough to be able to pay, I think, for about a year and then would have to do Medicaid. I also have to get help planning for that, as I do not think he qualifies.
I feel anguished at planning this. But the stress of daily care and having little to no freedom for many years is becoming overwhelming. And, I have had a taste these past two weeks post fall, of what life could easily devolve to—and it is not sustainable. And my sweet husband has finally had enough and insists that I find alternative arrangements for dad’s care (he is a compassionate man but it’s been a lot of years, even before dad coming to live with us, of little and now no freedom, supporting my parents physically and financially for a very long time. It’s ’more than my husband’s turn now that he is newly retired. )
Any suggestions for achieving placement in a reliable facility would be welcome. Also, how to broach subject with Dad when time comes…(Early on we did talk about this possibility someday—I just doubt he will recognize that someday is now).

Find Care & Housing
You piqued my interest when you mention the fall a couple weeks ago which resulted in an overall decline for your dad. I just completed a course today regarding falls, and that is exactly the typical outcome for elders ( and those will developmental disabilities).
I'm glad you are recognizing that his care needs are reaching the point where you can no longer be his sole caregiver at home.
I don't really have experience in direct nursing home placement. I have toured many, years ago when looking for a short term respite stay, and at that time, nursing homes were reluctant to take on a patient short term. They wanted a long term commitment. That is thankfully changing, but it seemed to me, they would be happy to accept the patient.

Here is what I want to suggest: you can find a Geriatric Care Manager online who does the work for you (for a fee). That may help to reduce your stress.
You want to be calm and happy with your father's care arrangements.

My thoughts on how to broach the subject with your dad, I don't think that's as big a deal as you fear. And, now is not the time to "ask" him how he feels about it. It is time to tell him this is your decision and the reason is his care needs exceed your capabilities. Let him know you've enjoyed having him at your home, but it is time for more capable hands to take care of his every day needs.
Helpful Answer (4)
Reply to CaringWifeAZ
Report
Hope21 6 hours ago
Thank you for your thoughtful and wise input. I will use it!
(1)
Report
Ask hospice for an evaluation of dad. Then you know what you will be dealing with in the near future, and hospital will not be as much of a factor. Hospice patients aren't likely to go to a hospital, and if they are in a facility, hospice nurses and doctor go to them regularly to assess their status. Dad may qualify for memory care, so check out some memory care facilities. Hospice will also visit him in memory care. The memory care facility may even own their own hospice company, as my husband's does.

Since memory care provides 24/7 care as well as socializing, entertainment, etc., this takes a huge burden off of you. Good luck in finding the right place for your dad!
Helpful Answer (3)
Reply to Fawnby
Report
Hope21 13 hours ago
Thank you, I will revisit this. He has declined hospice offered by two of his doctors recently. (He has the impression it’s assisted suicide—perpetuated by some family members in the past). But maybe now he will be more open to it—really isn’t loving taking his meds, etc. He may have another UTI (awaiting culture), which could be contributing to the extremity of his struggle right now, but he was approaching this point prior to this point anyway…I am also seeking to get home PT re established because he will not even do walking inside the house to exercise (only goes to bathroom, bed, chair, porch)—and I see him getting weaker and weaker. I fear any day now he will not be able to get up…...I hate this. He has been really valiant through a lot of health issues that would have take most people down. He may just be getting worn out ….
(1)
Report
See 1 more reply
You can contact an elder care attorney to discuss Medicaid. You will use your dad's funds to pay an attorney on his behalf. My mom is in a memory care facility, but they will not do IVs or daily or weekly injections. Other than that it has been an amazing experience. Visit as many places as you can and get his name on some wait lists. My mom's Medicaid application did not go well as we were dealing with someone that was new to the position. We sold mom's house and car and she is paying privately for memory care. We hope it will last about 18 months to two years then we will apply again for Medicaid and move her to a Medicaid facility.
Helpful Answer (2)
Reply to JustAnon
Report
Hope21 6 hours ago
Thank you. I will make an appointment with the attorney that did his advanced directives., etc.
(0)
Report
Since you will presumably stay an involved advocate for your dad remember to balance the nice-ness of the facility with your own convenience for your regular visits. No place will be perfect, and any place will be greatly improved by your regular presence. Best of luck to you, you all deserve some help and peace.
Helpful Answer (3)
Reply to Slartibartfast
Report
Hope21 17 hours ago
Very good point, thank you. There is one that is part of John Knox Village, about forty minutes away—looks really good and is reportedly warm and caring. But then he would not be accessing familiar hospital, etc. I would drive that no problem, but all that is a consideration.
(4)
Report
Ask a Question
Subscribe to
Our Newsletter