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Dad is 94, living with us over five years now. Since a recent hospitalization where he endured hospital delirium for the first time, his vision has worsened and he cannot read even on the largest font. Reading and playing games on his reader, were primary home activities for him. (Have had checked and no detached retinas or bleeding, there is hope some acuity will return.)He refuses audio books. He doesn’t enjoy TV—saying he can’t see it well (and I think his hearing is worse too). He will listen to it a bit, and music. He is much weaker after this hospitalization, and after three weeks is still not the same cognitively. He is a very high fall risk due to neuropathy in both feet.
I try to take him out somewhere every day, where he can get some walking and variety of experience. A meal, shopping (using wheelchair for that due to amount of walking), garden center, park, etc. . He also usually has several doctors appointments every week, a home nurse to check on him twice a week, and PT before this hospitalization (and it will resume soon). But with my husband newly retired, and household chores, I cannot entertain dad ALL day. So he sleeps. And recently he sleeps to the extent that he tells me to “go away” because, he wants to sleep. But then EVERY night he gets up. Sometimes “up” for the day, at three am. (Then snoozing in his recliner throughout the day.) Sometimes just for a while then back to bed, at two am then up and down several times. And sometimes, like right now, he decides to go out on the front porch to smoke and sit—at four, five, six am. With his bedroom right next to ours, and purposely leaving his door and the front door very squeaky, I wake up to keep an eye on him (he leans on his walker so hard it groans along the hard floors and I wake up). He often doesn’t Velcro his shoes tight enough and can fall as a result, he can’t recline his recliner far enough any more to get his feet up to an effective level to fight edema (and refuses a lift chair or any other chair—this one was my moms and means a lot to him, so I lift it up for him), etc. In fairness, once he is settled in his recliner, I can nap until he gets up again. Not only am I becoming ridiculously exhausted, but I sometimes startle awake at his usual times, even when he hasn’t gotten up—just out of habit (which makes it worse because then I might just be getting back to sleep when he does get up). My husbands sleep is now being interrupted along with all the other concessions he is having to make in this situation, which is becoming a problem.
I know many will say, especially with my other posts, that it is nursing home time. And with two of his docs recommending hospice, things may evolve to the point that that is the only thing that will work, as I am it as far as caregiving goes and due to a health history of his I am told hired caregiving help will not be available. I have been looking at facilities so as to have a plan if necessary (respite was planned at one place but had to be cancelled due to this hospitalization). But for right now, are there any suggestions for helping him to sleep during the night? In the hospital they give him melatonin, but he is such a fall risk that it is a concern for home. Maybe a day program that will keep him busier during the day so he will sleep at night? I feel so terrible, I usually try to hide that he is disrupting, etc so he doesn’t feel bad, but when he went outside in the night this morning I was visibly annoyed and told him he is waking everyone up and that going outside where he could fall and if we did manage to stay asleep, no one would know, so was not ok. I never show annoyance like that to him, he really can’t help it and isn’t asking for anything….sorry for this overtired and emotional and long post.

Brandee again,

The magnesium glycinate will also reduce stress and anxiety. It is not a prescription anti anxiety med but it will reduce the anxiety.

The magnesium glycinate will also help with regularity.

I'm 65, F, 140 pounds and take around 200 or 300 mg in the evening and have since menopause to help with sleep.
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Hope21 22 hours ago
Thank you! He has many “complicated”—as per hospital notes—health issues, the treatment for which at times is to the detriment of others. I will check with his doc (as I have found I must do with literally everything), to make sure it’s ok for him—sounds like a great solution!!!!
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400 mg of magnesium glycinate. You can give it right after dinner.
Make sure to one use the glycinate version. It is gentle on the gut. He should sleep through the night with this.

We used this for almost 2 decades with Mom. Another variation would be to give 200 mg at around 4:00 and 200 mg after dinner. We did this when sundowners was a problem.

If he has stomach issues that come and go you can drop down to 300 mg or 200 mg.

Also, keep up the good work with outside walking and driving him around. Being outside in the sun during the day will also help. Outside walking and riding in the car both will help. Sitting outside is also good. Mom picked up pine cones and put them in a bucket every day.
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If you are exhausted, it's time for a major change. Visit some facilities and get on waitlists. When one opens up get him placed. Waitlists can weeks or months long. Talk to his doctor about meds. You are wearing yourself out. Don't set yourself on fire to keep anyone warm. Your mental and physical health matter, too.
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I agree that medication may be a solution -- not just for sleep but possibly for depression.

I also think (if Dad has the funds) that you hire a companion aid to entertain him during the day. The less he sleeps during the day and is encouraged to do mental work, the better he will sleep. My very elderly Aunt with advanced dementia was being given melatonin (incorrectly) and Tylenol PM to help her sleep at night and it worked at first then stopped being effective. I took her off both and had the daytime helper have her fold large amounts of kitchen towels, sort object, read aloud to us, and walk around the house (my Aunt made it to almost 101). She slept for about 1-ish hours after lunch and went to bed at 9:30-ish, awakening at 9am. This worked for a long time until one night she got out of her bed/fortress past the barriers and fell, breaking her hip. She passed shortly after this.

Or, you can transition him into a good facility and reclaim your health and life while visiting your Dad to your heart's content. I doubt your Dad would really want to grind his own daughter to a pulp if his mind was not degraded by dementia and decline.

I wish you wisdom and peace in your heart as your figure out a sustainable solution for the both of you.
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Hope21 22 hours ago
Thank you!!! I agree that being more engaged and active during the day is going to be key. Especially now that he cannot read and play his games. This has been an ongoing issue, as until recently he has been so cognitively intact but physically challenged, that household projects even presented a challenge (things he could safely do, versus what he would consider busy work created for him rather than a real contribution). There is today a disconnect in his perception—between the level of ability versus his reality—so it will be a balancing act between keeping him safe but not further diminishing him. For example, he feels like I can just drop him at the senior center and come back later in the day. He does not engage in the activities, but walks around the building hoping someone will stop and talk to him (but everyone is there to engage in activity and then visit as they do). This has never worked, but he think it will eventually. Last time he was there, the lady at the sign in desk shadowed him, afraid he might walk into the parking lot, etc (I was outside in my car. At the time he absolutely would not have gone into a parking lot, but I was there, would not leave him at a place where no one was charged with his care.). Now, I would not even sit in my car while he was in a place “unsupported”, nor will I leave him in my car while I run into a store (not because he would wander. But because I could see him exiting the car to prop himself against it to smoke, and possibly falling doing so). I know there are day programs at both a local assisted living and at a lively nursing home. If I can get him to try these out rather than his plan of trying to make friends at the senior center, it might help! (And I have tried offering to stay with him at the senior center and doing activities as a conduit for conversation with others, and then eventually “bowing out” so it could be his thing—but the offer was declined—(this back when he was safe to be in there without me….)).
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Ask your doctor about trying medication, my mom took mirtazapine and it was a real game changer
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