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Based on research we understand it can be very variable as to timing but we would appreciate some real world experiences to judge where we are in the progress of LBD disease.


How long did each stage of LBD last for your person?
How long between first symptoms to AL/MC to death?
Especially those with Capgras syndrome, were you able to get the person into AL/MC and keep them there?

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Sorry you have not gotten a response on LBD.
here is a link for a post from Igloo, whose mom had LBD. Maybe it will help.


https://www.agingcare.com/questions/my-mother-has-lewy-body-dementia-she-was-moved-into-a-nursing-home-because-she-has-visions-all-day-457619.htm?orderby=recent
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AinSeattle Feb 2022
Thanks!
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