My relative moved from IL to AL recently. She didn't want to, but once the move took place, she settled in and was doing pretty well for about 2 weeks. Then one day, she couldn't stand up without assistance, which was new. (Previously, she was frail and extremely slow, but she could stand by herself and walk with a walker for short distances.) She went to the ER and then to her own doctor, who could find no particular issue. The doctor advised her to really dedicate herself to exercise and building strength, which she hasn't done.
It's been a couple of weeks now, and she hasn't returned to using the walker. She stands by herself sometimes and at other times calls for assistance (hard for me to know how much), and relies on either a manual or power wheelchair to get around. Recently I gave her a gentle reminder about the doctor having recommended exercise, which wasn't received well.
I'll be honest: she's not my parent, and she can make her own decisions. I do wonder though whether it's even possible for a frail elderly person to recover strength and mobility after a few sedentary weeks? And if she does give up walking, won't it be likely that she'll lose the ability to stand and transfer, sooner? I can't decide whether I should point out the downsides of not trying or leave it alone. It's only my business in that she expects me to take her to the doctor, restaurants, shopping, etc., all of which would be more complicated if she needs more hands-on assistance. Any advice?
If she doesn't regain her ability then help her apply for TLC, which can be covered by Medicaid. You must make a clear boundary that you cannot transport someone who needs a wheelchair, due to back problems (getting her in and out of your vehicle and lifting a wheelchair into your trunk). And if you don't have back problems now, you will after trying to get her places.
It can also be motivating for you to say directly that you are afraid you won't be able to safely escort her places if she can't move well enough to help you with getting her in and out of the car etc. Transferring can be dangerous for the carer and the patient. I wouldn't be afraid to bring it up directly, and let her know that you want to make sure the two of you are safe.
Experience suggests to me that the easiest ‘therapy’ for walking would be sitting down to use a push-push or rotary leg exerciser (of the sort quite common in gyms). That is not going to risk falls, or require any supervision or assistance in walking. Buying, borrowing or hiring one would help provide much more leg exercise, without one-on-one therapist assistance.
Let her know that if she does not regain her mobility, you will not be able to take her out. It's possible that she won't try. It's possible that she'll try and succeed. It's possible that she'll try and not succeed, because it's not possible anymore at her stage. In any case, tell her that she needs to prepare to use the transport services provided by the Assisted Living facility. That, after all, is one of the reasons for moving to AL.
The AL transportation services (in-house, or contracted) will take her to medical appointments. Check into whether there are doctors and nurse practitioners who visit the facility, that she can switch to. She may be able to do some of her appointments by zoom. The facility probably has someone who will take blood and send it out to a lab.
The facility may have occasional shopping trips that residents can sign up for, to go to certain stores. She can order, or you can order for her, groceries for delivery and everything else online. Instead of going to restaurants you can order a meal for pickup or use delivery by Doordash or UberEats.
Don't commit yourself to risking your own physical health by doing her transportation.
This is for discussion--your own unique case here--with the MD, but what is REALLY required here is a PT consult and a medical POA at the side of this person to listen in and to help with "sticking to the plan". The assessment will begin with the question of whether or not this is doable in the "best circumstances".
You are right to be worried about how much more hands-on assistance will be required to take her out in public. It takes a lot of strength to safely help someone in and out of a car. It takes a lot of strength to fold up the wheelchair or walker and put it in the car, then take out at every stop. If in a wheelchair, you will probably be pushing her, and you will find how many places in public are inaccessible by wheelchair. You never notice until you're in that position!
Believe me, I did it for years with my husband. It has caused my own hips and legs to break down and I can no longer do it.
If she accepts her lack of mobility, it will affect her ability to go shopping, to restaurants, and everywhere else she wants to go. You will not be able to take her everywhere that she wants to go. And, she has no right to "expect" you to take her everywhere if she is unable to stand and support herself.
As a far more general statement, I was a personal trainer with a certification specializing in elderly and disabled clients. You'd see me when you'd come to at the gym after you were released from PT/OT. There are studies published in reputable journals where people in their 70s, 80s and 90s began lifting weights under trained supervision after clearance from a doctor. They were able to build muscle and strength. It helped with movement, balance and in many cases had cognitive benefits as well. It makes bones stronger which is especially important for women of all ages.
The only reason I mention that is to let you know it is *possible* for someone to build muscle in very old age even if they never worked out before, but there are caveats. First of all they have to be willing and able to exercise consistently. That's the biggest hurdle. Professional supervision is key. Another caveat is diet, and making sure there is enough protein. Cognitive factors will come into play but dementia doesn't automatically exclude someone from training w a professional.
Now, the practical aspect. Is your loved one willing to consistently exercise? It sounds like the answer is no. If there is PT/OT involved you can ask them sit in on a session with your LO. In my experience, telling a LO to exercise gets resistance. You might start by saying "I won't be able to take you anywhere if we don't do our exercises regularly because I can't get you in and out of the car."
There are a lot of variables here and none of what I am saying is or should be considered professional advice. It's what you (and the LO) are comfortable with and willing to do. It will include a mix of professional and personal efforts from several people. I don't know what your level of commitment is with time and effort. You can't make someone do something, but you can make it safer to do what you're willing to do for them.
For the rest of us on the forum, women in particular often avoid using weights but they do strengthen bones. If you are taking care of someone else, the stronger you are, the easier it will be for a longer time. You won't be as tired either after you get going on a program, even though it sounds like it would be the opposite. Did I work out while taking care of my mom at home? Not enough, that's for sure, and I felt and saw the results. When I go back to the gym next month I'll be thinking about my own future as an elderly woman and how what I do today will help me in the future.
And don't think I can't hear the laughter from all you caregivers about having to do one more freaking thing in your day or expend one more ounce of energy to do it. I hear it, and I am laughing too.
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