I’ve heard people say that we, as caregivers can get paid - through the state I think - because we are full time 24/7 taking care of a spouse, parent, friend of the family, or what have you. I just don’t know where to start to look into this. It sure would be a big help to have that little extra income. My husband and I were separated before all this but now he’s had to move in with me and is nearly 100% bed bound. Taking care of him takes up my whole life. I’m hoping I could even find respite care for him when I need a break.
I also suggest that you contact a Hospice of your choice and let them determine if he is eligible. You will get the supplies you need. All the equipment that you need as well as a Nurse will come at least 1 time a week to check on him and a CNA will come 2 to 3 times a week to give him a bath or shower and order supplies.
With Hospice you can request a Volunteer that will come in and either sit with him or they will often do light housecleaning or run errands for you. They can not do "hands on care" so their time is limited to about 3 to 4 hours.
And one of the benefits of Hospice is Respite is covered by Medicare or Medicaid and that is about 1 week (a little less than a week) but it will give you a break.