Hello everyone I’m Chris and 45 years old. Around October 2016 I started feeling weak and exhausted more than I ever had before. It would hit me and last two or three days then I may go two weeks and feel fine. I went to doctor and they did the routine lab work and physical and everything came back almost perfect. For the next few months it would still hit and last a few days and then I would get over it. About this time last year I started getting numbness in hands, weak or heavy legs times, my hands would get weak to where I would drop or just couldn’t hold on to anything and of course would still feel weak and exhausted during this time. Just like with the weakness these symptoms would hit me intermittently every few weeks and then go away and I would feel fine until the next onset of problems. By January of this year my symptoms had got worse and were coming on more often and each time they were worse. In February my doctor finally diagnosed me after several test with RMS. They started me on some meds which didn’t seem to have much effect on me. By April I decided along with my wife that I would quit work as by this point my symptoms were daily and I was falling almost daily. The doctor had a physical therapist come three times a week and I tried to stay as active I can. My wife being a teacher has helped me throughout the summer but now that she has to go back to school we decided or mainly her that we would get me home health care to help me with my needs and therapy.
That brings me to my question. I know this is for aging care and while I’m only 45 I guess I fall in line with it having someone come and take care of me. How do I communicate with my nurse in a way to where I get what I need but I still have the independence I want? The nurse came today and she seems like a really nice person and one that would care about my health and issues but I’m only 45 still young but losing a lot of my mobile abilities. Right now I know she is coming around 10 and of course has to check my vitals everyday (facility policies) then around 11 I will do my therapy which for the first couple a day my therapist will be here with us to show everything I do and how to chart everything. Then something I’m not looking forward to is she will help with my shower. Now I can do most of this myself but she will be there in case I need help or fall. After that exhausting feat as I’ve found with MS she will make my lunch and do some cleaning around here and then set with me the last hour or so. She will leave around 2 to 230 and my wife should be home by 4.
Anyway, sorry about the book but I guess I still haven’t opened up to this idea and if anyone could give some good advice about communicating, getting a good rapport and just basic things I may need to know I would appreciate greatly. Oh and the awkward shower thing I would definitely appreciate that.