My mother is 91, and in the late/end stages of Alzheimer's. She has declined so much in the past few months that frankly we're stunned that Hospice is considering letting her go.
She's down to 88 lbs, can only manage a small amount of pureed foods spoon fed to her, and can barely talk anymore. Her hospice nurse told us that the doctor thinks she's stable enough to pull her services. We have been caring for her in our home, and have created as healthful, stress-free environment as we possibly can. She cannot manage any tasks on her own, from walking, eating, toileting, dressing, cleaning herself, etc. My husband and I assist her with all of it. She will sit on the toilet, and is rarely incontinent. It often takes her 3 or 4 trips to the toilet before she can figure out what it is she needs to do.
Many days, she cannot communicate, cannot sit up straight without pillows to prop her, won't pee for 20 hours, doesn't eat, etc. She seems to have very little reserve left. Yet, when the nurse comes, she'll answer her appropriately, smile, sit up straight, etc. But, they measure her, and her weight and inches are down. Her hospice social worker told me just 2 weeks ago after evaluating my mom that she could see the decline and not to worry, that mom would qualify. Now, yesterday, we get word that the doctor wants her out. Is there more behind this decision that just what's good for mom?
It seems that because we have kept her from falling, getting infections, or sick, they are saying she's not declining rapidly enough. We have been so grateful that at the end of her life, they would be there to help her/us through. Now, I envision a nightmare that may include her going into a hospital, which she does not want.
Can I just call another hospice company? Has anyone ever appealed their decision? Do I want to keep with the same company after an appeal?
Thanks in advance for anyone's experiences with this or thoughts.