I had a terrible conversation this morning with a nurse from a hospice agency. She said that my husband would no longer be able to be treated by any of his specialists, no ER visits, etc. Basically, I felt he would lose any supportive care he already had in place. There is no curative care at this time so that isn't an issue. I was looking for quality of life support in the home. I am still upset over this. The worst was when she said they would not allow treatment for a brain bleed. Are you serious? That isn't happening on my watch but I thought hospice was supposed to be helpful, this is the opposite. Of course I asked for someone else to speak with but I want feedback from others on how they were treated and what supportive care was allowed. I have private insurance, not Medicare. I have heard about some bad nurses on hospice but I never thought I would get one right off the bat with a phone call.